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Subject:
From:
"Barber, Kenneth L." <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 16 Oct 2001 14:05:04 -0400
Content-Type:
text/plain
Parts/Attachments:
text/plain (74 lines)
well, kyle, i did not have the lower back mri, but a upper with the disk
numbered starting c-3-c-7. sternosis, etc. had the epidurals did nothing.
surgery sugested. i ask a question. "if this is caused by my muscles in both
sides of my back and sholders spaamsimg and pulling from both sides of my
spine, can you tell me that once cut upon, that my back would heal or would
the spasming muscles keep it pulled apart?" the doc said "never thought
about that."
"no thanks, as long as i can stand the pain, no knives."

-----Original Message-----
From: Cleveland, Kyle E. [mailto:[log in to unmask]]
Sent: Tuesday, October 16, 2001 1:52 PM
To: [log in to unmask]
Subject: Re: where are y'all?


Same here, re: height.  I used to be a solid 6'1".  Now, I'm barely 6'.

Got a question for y'all (Joy, you might be interested in this too, seeing
as how you've had related problems of late):

I've have pretty severe back pain/spasms for a few years and have been
seeing a pain specialist who has me on a handfull of narcotics and Zanaflex.
He had been doing some head scratching over my DX and I allowed that I'd not
had an MRI in a few years.  Doc agreed that imaging might help with DX, so
this is what the radiologist said after my lumbar MRI:

(Not the full text, but his synopsis--

"Diffuse disk bulges at L3-4 and L4-5, right lateral disk bulge at L1-2 and
right lateraldisk herniation at L2-3.  There is associated moderate spinal
stenosis at L1-2,L3-4,L4-5 with mild spinal stenosis at L2-3.  There is
encroachment of the right neural exit foramina from L1-2 through L4-5. There
is a minor disk protrusion at L5-S1."

Can someone help me unravel this DX and give me a bit of a prognosis (based
on experience)?  The ONE treatment option he offered was epidural injections
of cortico-steroids bi-weekly for three treatments, then see where we are at
this point. Have any of you had this treatment and/or similar DX?  If you've
had the epidural protocol, did you consider it a "success".  If you obtained
relief from pain/spasms, how long did this relief last?  Anybody take the
surgical route?

Thanks for the info!

-Kyle

-----Original Message-----
From: Barber, Kenneth L. [mailto:[log in to unmask]]
Sent: Tuesday, October 16, 2001 6:57 AM
To: [log in to unmask]
Subject: Re: where are y'all?


it would be interesting to lots of the people on the list to know what can
happen in ten years.

-----Original Message-----
From: Magenta Raine [mailto:[log in to unmask]]
Sent: Monday, October 15, 2001 2:37 AM
To: [log in to unmask]
Subject: Re: where are y'all?


I was part of a CP and aging study recently, follow up from ten yrs ago ...
well, the biggest surprise was that I'm now only 5 ft 4 instead of 5 ft
6....
Must be my legs and or neck have shrunk.

The results of the overall study will be sent to me.

Love,
mag

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