yes, i had the same thoughts kat! maybe she slept in a separate bed in his
room? but, golly!
Tamar Raine
[log in to unmask]
Now serving tee shirts! and soon to come, Maui posters and other items;
www.cafepress.com/tamarmag
> [Original Message]
> From: Kathleen Salkin <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 10/17/2006 3:24:07 PM
> Subject: Re: Extreme Home Makeover
>
> But that's the point - it would have been great if the viewing public
> had been allowed to see Aaron with his communication device to see
> that he can communicate effectively with others. If I hadn't known
> any better, I would have said he would have never been able to
> communicate his needs to anyone else other than his family.
>
> And on a related topic, did anyone see an "uh oh" Freudian moment
> when his mother said she'd spent every night with him for 15 years?
> I remember thinking it's a miracle that boy won't need counselling
> and David said as much to me after we quit watching the show.
>
>
> Kat
>
> On 17 Oct 2006, at 17:45, Anthony Arnold wrote:
>
> Sure I'm involved at both the Prentke Romich Company and the AAC
> Institute,
> and I like seeing my work out in public and on tv, not for my personal
> satisfaction, but we develop and support these devices to help
> individuals
> contain a better life than what they would otherwise have. I know that
> Aaron is more involved than I am, but he still had his wheelchair,
> and my
> communication device is equally as important as my communication device.
>
> Nobody really forced me to work at the Prentke Romich Company, I
> chose this
> profession after of witnessing how AAC technology has benefited me
> throughout the years. I have always carried my communication device
> around
> like nothing to it. It even went on a cruise with me in February. It's
> going to go to Closing The Gap tomorrow, sure I am going to see Barry
> Romich, but even if I wasn't, my Pathfinder would still be going with.
>
> Thanks,
> Anthony
> www.anthonyarnold.net
> (I blog)
> -----Original Message-----
> From: Cerebral Palsy List [mailto:[log in to unmask]] On
> Behalf Of
> Kendall David Corbett
> Sent: Tuesday, October 17, 2006 3:21 PM
> To: [log in to unmask]
> Subject: Re: Extreme Home Makeover
>
> There has been a lively discussion of this episode on the ACOLUG
> listserv as well. Apparently Aaron (the teenager on the show with CP)
> already has an AAC device, but chose not to use it during the taping of
> the episode. That's his choice, but I would have liked to see him use
> it to say "Hi, Ty" or something similar early in the episode to show at
> least a little of an AAC device's capabilities.
>
> Kendall=20
>
> An unreasonable man (but my wife says that's redundant!)
>
> The reasonable man adapts himself to the world; the unreasonable one
> persists in trying to adapt the world to himself. Therefore, all
> progress depends on the unreasonable man.
>
> -George Bernard Shaw 1856-1950
>
> -----Original Message-----
> From: Tamar Raine [mailto:[log in to unmask]]=20
> Sent: Monday, October 16, 2006 6:06 PM
> To: [log in to unmask]
> Subject: Re: [C-PALSY] Extreme Home Makeover
>
> You can't just hand a device to somebody. they have to test a variety to
> see which one will work best for the person. by the way, there are a
> group
> of folks all with speech impairments, that have formed a business called
> communication at ease, they design communication booklets, overlays,
> etc,
> for pwd. this group is part of the micro-enterprise group at the cp
> center
> that I'm involved in.=20
>
> they were at supported life last month, and got a number of requests
> from
> calif state dept of develp. dis. they are also going to hospitals and
> nursing homes........ There was even a lot of interest from an aug.
> device
> maker who said he'd love to give his customers something they can use
> for
> the 4 months it takes to get a device into their hands. and while they
> are
> using the booklet they can be familarizing themselves woith the symbols.
> great idea!=20
>
> Tamar Raine
> [log in to unmask]
> Now serving tee shirts! and soon to come, Maui posters and other items;
> www.cafepress.com/tamarmag
>
>
> > [Original Message]
> > From: Kathleen Salkin <[log in to unmask]>
> > To: <[log in to unmask]>
> > Date: 10/16/2006 4:25:44 AM
> > Subject: Re: Extreme Home Makeover
> >
> > I watched part of this - but didn't see that he got an augmentive =20
> > communications device - did ABC give him one? I know the main
> > focus =20
> > was on his mother and the Little League baseball team, but I did =20
> > think they should have thought of enabling him to communicate his =20
> > needs - after all, his mother isn't going to be around forever, as =20
> > cruel as that sounds.
> >
> > Kat
> >
> > On 15 Oct 2006, at 10:49, Anthony Arnold wrote:
> >
> > Friends,
> >
> >
> >
> > If you're anything like me, you're a fan of ABC's Extreme Makeover,
> > =20
> > even if
> > you're teary when the show is done. I want to point out in August =20
> > the show
> > was in Minot North Dakota (about 4 hours from me) building a house for
> a
> > family who has a son with Cerebral Palsy, and the parents are =20
> > outstanding
> > people, the mother has even taken the time to organize a baseball =20
> > team for
> > kids with special needs. The episode will air tonight at 8est, I =20
> > don't know
> > about the west coast, you might check your listings.
> >
> >
> >
> > Thanks,
> >
> > Anthony
> >
> > <http://www.anthonyarnold.net> www.anthonyarnold.net
> >
> > (I blog)
> >
> >
> >
> >
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