Yeah I know what you mean - I have two degrees myself and am in a
wheelchair, too. Unless I say something witty at first, they ignore me.
It gets old fast, doesn't it?
Kat
Bob Segalman wrote:
> Kat
>
> Most people who see me on the street view me as defective. They ignore the
> name plate on the back of my wheelchair the says:
>
> "Bob Segalman, Ph.D., Sc.D. (Hon.) - the only American with cerebral
> palsy known to hold two doctorates"
>
> - Bob
>
> -----Original Message-----
> From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of
> Kathy
> Sent: Wednesday, July 30, 2008 4:56 PM
> To: [log in to unmask]
> Subject: Re: Genetic Link to CP??
>
> Well, I don't consider myself a "defect," either (or else I'd be sitting
> at home doing nothing, like a lump) but unfortunately AB people think we
> are. :( Hell, I know plenty of deaf/HOH people who don't want to
> identify themselves as disabled because they don't want to be seen as
> defective - of course that means they don't wear the hearing aids or
> cochlear implant processors that could help them so much.
>
> You really stirred up some hornets with this one! ;)
>
> Kat
>
> Linda Macaulay wrote:
>
>> James,
>>
>> Read or don't read what I post to the list. Form your own thoughts
>> and opinions and express them as you like. I got the email and
>> thought it would be worthy of some comment....and apparently I was
>> right ;)
>>
>> For the record, I like who I am and certainly don't think I am
>> DEFECTIVE...One of the reasons the article title made me react so
>> vehemently "No Way!" However, I was intrigued and read on and perhaps
>> there is a grain of salt to a genetic connection that may make
>> conditions such that CP COULD occur. Certainly doubt it would ever be
>> found to be like Down's Syndrome or other genetic diseases.
>>
>> Linda
>>
>> On Jul 30, 2008, at 5:41 PM, James Fee wrote:
>>
>>
>>> [log in to unmask] wrote:
>>>
>>>> Hang on, I don't think Linda was calling CP a genetic defect, just
>>>> that CP
>>>> could be caused by genetic mutations.
>>>>
>>>>
>>> I don't think she CALLED it anything, just suggested we read an
>>> article about it might be..
>>>
>>> Jim Fee
>>>
>>>> Kat
>>>>
>>>> Original Message:
>>>> -----------------
>>>> From: James Fee [log in to unmask]
>>>> Date: Wed, 30 Jul 2008 17:17:51 -0400
>>>> To: [log in to unmask]
>>>> Subject: Re: Genetic Link to CP??
>>>>
>>>>
>>>> I really wish people would get this straight, and I don't know why
>>>> if urks me SO MUCH that they don't, perhaps its a male virility thing.
>>>>
>>>> There is a genetic defect that causes a lower of calcium in the
>>>> bones, children born with this defect break bones wille-nillie...in
>>>> fact some parents have been accused on child abuse because of it.
>>>> But the broken bones ARE NOT a genetic defect the lower calcium is.
>>>>
>>>> ITS THE SAME WITH CP, DAMN IT. CP (simplified to the ridiculous) is
>>>> broken nerve fibers. SOMTIMES those broken nerve fibers ARE CAUSED
>>>> by a genetic defect in the Mom, BUT CP IS NOT a genetic defect.
>>>>
>>>> Okay, I'll go back to my corner now.
>>>> Jim Fee
>>>>
>>>> Linda Macaulay wrote:
>>>>
>>>>
>>>>> Here's something I found on BabyCenter -- take a look!
>>>>>
>>>>> Australian study seeks genetic roots of cerebral palsy
>>>>>
>>>>>
>>>>>
>>>>>
> http://www.babycenter.com/204_australian-study-seeks-genetic-roots-of-cerebr
>
>
>>>> al-palsy_5234805.bc
>>>>
>>>>> (If clicking doesn't work, simply cut and paste the link into your
>>>>> Web browser.)
>>>>>
>>>>>
>>>>> When I first saw the title, I thought "No way!", but then in
>>>>> reading it, maybe...
>>>>>
>>>>> Heck, my mom and I both have Factor V Leiden which is a genetic
>>>>> mutation to be more prone to blood clots. When we learned I had it
>>>>> and then mom too, we realized that was probably why she had so many
>>>>> miscarriages and that I came early...placenta bloodclotting...thus
>>>>> why I must take injections of blood thinner when pregnant and be
>>>>> monitored closely...
>>>>>
>>>>> Any thoughts?
>>>>>
>>>>> Linda
>>>>>
>>>>>
>>>>>
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