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Subject:
From:
Kathy Jo Pink <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 17 May 2005 14:28:02 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (155 lines)
No, I didn't say that IL was too expensive.  That was REM.  I will be
starting with Wisconsin Coalition For Advocacy .  should I wait to see
how that goes before I contact the Waisman Center?



Kathy Jo Pink











Kendall David Corbett wrote:

>Kathy Jo,
>
>As Ken and Bobby said, CP isn't something you "get over."  Your
>statement reminded me of some "well meaning 'friends'" of my mom when I
>was in school.  They were positive that if my/her faith were strong
>enough, that I could be "normal."  I've got two major problems with
>that.
>
>1.      I think I was and am pretty much normal, even if I do use a
>wheelchair.  I did "normal" things other kids did, although maybe a
>little differently;
>2.      G_d probably had (and has) other things in mind for me than
>testing my faith (or my mom's faith, for that matter) with my
>disability.  I'm not sure what those things are, but I think if I do the
>best I can with what I've got, G_d will be OK with that.  =20
>
>As far as "getting over CP," I think we learn better ways to cope with
>the challenges that we encounter, whether they be physical obstacles, or
>the attitudes of others.  I've learned to just ignore people like my
>mom's former "friends," because it's just not worth the effort to try
>and educate some people.  I spend a _lot_ of time personally and
>professionally working with little kids on disability awareness
>activities, because they seem to be the most receptive.  That doesn't
>mean I ignore older kids and adults, but I give them about three chances
>and move on. =20
>
>You said the first IL center you checked out was "too expensive."  Get
>in touch with the folks at the Waismann Center, and find out if they
>have someone who can help you to develop a plan to achieve the level of
>independence you'd like.  Here's contact info.
>
>Waisman Center=20
>University of Wisconsin-Madison=20
>1500 Highland Ave=20
>Madison, WI 53705-2280=20
>Main Phone:  608-263-1656=20
>Main Fax:  608-263-0529=20
>Website:  http://www.waisman.wisc.edu/=20
>
>Carl Durocher can get you in touch with the right folks at Waismann,
>
>Carl Durocher
>608-265-2544
>[log in to unmask]
>
>and Linda Rowley can give you other contacts throughout Wisconsin
>
>Linda Rowley, LPN, BS
>608-263-5973
>[log in to unmask]
>
>=20
>        =20
>=20
>
>Kendall Corbett
>
>An unreasonable man (but my wife says that's redundant!)
>
>The reasonable man adapts himself to the world; the unreasonable one
>persists in trying to adapt the world to himself. Therefore, all
>progress depends on the unreasonable man.
>-George Bernard Shaw 1856-1950
>
>-----Original Message-----
>From: Bobby Greer [mailto:[log in to unmask]]=20
>Sent: Sunday, May 08, 2005 3:44 PM
>To: [log in to unmask]
>Subject: Re: new member intro and some well-meant comments...
>
>Kathy Jo,
>
>    Acceptance is action and action is an ongoing process.
>For example, if you let others "decide for you", that is not action it's
>giving up. Action is looking into where you might want to stay and
>making a
>decision. You speak of "accepting CP" as if it were an event, but it is
>not,
>it is a lifetime process.
>
>Bobby
>----- Original Message -----
>From: "ken barber" <[log in to unmask]>
>Newsgroups: bit.listserv.c-palsy
>To: <[log in to unmask]>
>Sent: Sunday, May 08, 2005 5:02 PM
>Subject: Re: new member intro and some well-meant comments...
>
>
>
>
>>  i said "is it true?" have you gotten over cp? maybe
>>you should pay attention to some of the email you get.
>>
>>   you do not just out grow cp. its not an allergy.
>>
>>--- Kathy Jo Pink <[log in to unmask]> wrote:
>>
>>
>>>Huh?
>>>
>>>
>>>
>>>
>>>
>>>ken barber wrote:
>>>
>>>
>>>
>>>>well, has it been true?
>>>>
>>>>--- Kathy Jo Pink <[log in to unmask]> wrote:
>>>>
>>>>From
>>>>
>>>>
>>>>>the time I was age
>>>>>ten to age twenty-nine, everyday I was told that I
>>>>>would walk and get
>>>>>over C.P. later in my life...
>>>>>
>>>>>Kathy Jo Pink
>>>>>
>>>>>
>>__________________________________________________
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>>
>>
>
>
>
>

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