Hello,
Back on the list again.  The new list dad is trying to keep spam down and
changed some setting.  Unfortunately, this was one of the few lists that
still had my old email address.  So, if you're having problems, you may
need to resubscribe with your new email address (my server had changed it
from [log in to unmask] to [log in to unmask]).
Anyway, my reply may be of interest to others I've reforwarded it to the
list.

Elizabeth Thiers, OTR
email: [log in to unmask]
homepage: http://www.bv.net/~john/bethsot1.html

----------
> Reading my mail in a haphazard way as always.  Has she tried searching
> Medline?  Medscape has a free search at http://www.medscape.com
> There are other places to search, feel free to look them up on my
homepage
> at http://www.bv.net/~john/search.html
> Also, if he was gagging, he may have had some reflux or other fluids
going
> down into the trachea and larynx area especially with the respiratory
> difficulties (a big flag).  The doctor didn't do a modified Barium
swallow
> test on him?  (also know as videofluoroscopy)  May also want to do some
> checking of speech and respiratory sites.  Unfortunately, don't have many
> of those on my site but, may be able to get to them through Internet
> searches.
> Hope this helps, let me know.
>
> Elizabeth Thiers, OTR
> email: [log in to unmask]
> homepage: http://www.bv.net/~john/bethsot1.html
>
> ----------
> > From: Jill Jacobs <[log in to unmask]>
> > To: [log in to unmask]
> > Subject: GI tubes and death in kids with CP?
> > Date: Thursday, January 21, 1999 4:52 PM
> >
> > I am looking for information about the incidence of infection in tube
fed
> > children  (GI tube), especially death rate and cause of death.  Can
> anyone
> > help with statistics or any data at all?
> >
> > I am researching for a Mom (friend of mine) whose son died in November
> from
> > an infection related to his GI tube.  He was 17 years old, and had
> Cerebral
> > Palsy, and was a very healthy young man. He died quite suddenly, had
been
> > gagging a bit and was 'not totally himself', but otherwise fine.  He
had
> no
> > fever.  He suddenly went into respiratory distress and lost
consciousness
> > and never came out of it.  He died two weeks later.
> >
> > Mom is searching for information.... if anyone knows anything about
this
> > sort of thing, or can send in in the right direction, please let me
know.
> >
> > Thanks,
> >
> > Jill Jacobs