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Subject:
From:
"Barber, Kenneth L." <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 9 Mar 1999 08:16:09 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (180 lines)
i'm sorry. i don't mean to be critical of people like your parents, but,
part of being a big boy is making accomodations to take care of problems. it
is not you that needs to grow up.
please don't flame me for this statement, it is not given as a statement to
inflame anyone. it just that if anyone should be willing to make
accomodations, it should be family who would care. imho

> -----Original Message-----
> From: Chester M Worwa [SMTP:[log in to unmask]]
> Sent: Tuesday, March 09, 1999 8:17 AM
> To:   [log in to unmask]
> Subject:      Re: [      Re: Quiet list]
>
> I have tried asking for that, but people like my parents say that I am a
> big boy and can take myself.  However, I would prefer something,
> even though the bathroom is right accross from my bedroom.
>
> On Tue, 9 Mar 1999, Barber, Kenneth L. wrote:
>
> > oh, a suggestion. i do not know if it is feasible for you, but, would a
> > bedside container help until morning?
> >
> > > -----Original Message-----
> > > From: Chester M Worwa [SMTP:[log in to unmask]]
> > > Sent: Tuesday, March 09, 1999 7:07 AM
> > > To:   [log in to unmask]
> > > Subject:      Re: [      Re: Quiet list]
> > >
> > > I thought it ment something to do with going to the bathroom, because
> > > after 3 hours for me and I have to go and with braces on at night it
> is
> > > not fun.
> > >
> > >
> > > On Tue, 9 Mar 1999, Barber, Kenneth L. wrote:
> > >
> > > > actually, rigimortis (spelling) is what happens when people dies and
> > > gets
> > > > stiff. that's where the term of calling a corpse a stiff came from.
> i
> > > was
> > > > playing with the word to indicate how stiff and sore i get after
> just a
> > > > little while in bed.
> > > >
> > > > > -----Original Message-----
> > > > > From: Michelle Montminy [SMTP:[log in to unmask]]
> > > > > Sent: Monday, March 08, 1999 3:45 PM
> > > > > To:   [log in to unmask]
> > > > > Subject:      Re: [      Re: Quiet list]
> > > > >
> > > > > what's rigimortus?
> > > > > -----Original Message-----
> > > > > From: Barber, Kenneth L. <[log in to unmask]>
> > > > > To: [log in to unmask] <[log in to unmask]>
> > > > > Date: Wednesday, March 03, 1999 10:54 AM
> > > > > Subject: Re: [ Re: Quiet list]
> > > > >
> > > > >
> > > > > >i usually can't stay in bed much longer than 3-4 before
> rigamortus
> > > sets
> > > > > up.
> > > > > >
> > > > > >> -----Original Message-----
> > > > > >> From: Jan Nottmeier [SMTP:[log in to unmask]]
> > > > > >> Sent: Tuesday, March 02, 1999 3:31 PM
> > > > > >> To:   [log in to unmask]
> > > > > >> Subject:      Re: [      Re: Quiet list]
> > > > > >>
> > > > > >> Yes, I did but I could only stand it for about 3-4 hours max.
> > > > > >>
> > > > > >>
> > > > > >> Chester M Worwa wrote:
> > > > > >>
> > > > > >> > Did you ever try wearing the braces at night?
> > > > > >> >
> > > > > >> > On Mon, 1 Mar 1999, Jan Nottmeier wrote:
> > > > > >> >
> > > > > >> > > Hi Linda,
> > > > > >> > >
> > > > > >> > > Saw your post and I thought I should respond.  I had my
> tendons
> > > > > >> > > lengthened behind my knee about ten years ago.  I had my
> > > tendons
> > > > > >> > > lengthened in Germany because the health care insurance
> covered
> > > it
> > > > > >> > over
> > > > > >> > > there at that time But that is another story.  Anyway
> before I
> > > left
> > > > > >> > for
> > > > > >> > > Europe my doctor in the United States told me to expect to
> be
> > > > > >> > > hospitalized 4-5 days, had I elected to have the operation
> in
> > > the
> > > > > >> > US.
> > > > > >> > >
> > > > > >> > > Right after my surgery I had major cramps for about ten
> days
> > > while
> > > > > I
> > > > > >> > was
> > > > > >> > > in a hospital in Germany .As for recovery time, my legs
> were in
> > > a
> > > > > >> > cast
> > > > > >> > > for about 6 weeks, followed by 2 months of exercises to get
> the
> > > > > >> > strength
> > > > > >> > > back into my legs.  After spending 6 weeks in a cast I was
> > > unable
> > > > > to
> > > > > >> >
> > > > > >> > > lift my legs out of the cast after it was cut open.
> > > > > >> > >
> > > > > >> > > Following the surgery I could really tell a difference I
> was
> > > able
> > > > > to
> > > > > >> >
> > > > > >> > > strengthen my legs out and could stand up tall.  After
> about
> > > seven
> > > > > >> > > months however, my legs started to get weaker again.  My
> doctor
> > > at
> > > > > >> > the
> > > > > >> > > time said that I should start wearing braces again to
> > > straighten
> > > > > out
> > > > > >> > my
> > > > > >> > > lags again.  But I had trouble sleeping because they really
> > > hurt at
> > > > > >> > > times.  I should have most likely tried to fight through
> the
> > > > > >> > discomfort
> > > > > >> > > but I didn't.  Now my walking is getting worse and worse
> with
> > > time,
> > > > > >> > but
> > > > > >> > > I don't know if I want to go back to that doctor.
> > > > > >> > >
> > > > > >> > > I didn't mean to discourage you, but I wanted you to know
> the
> > > > > >> > possible
> > > > > >> > > advantages and possible drawbacks both short term and long
> > > term.
> > > > > >> > But I
> > > > > >> > > am not a doctor, I was telling my personal experiences, so
> the
> > > > > >> > surgery
> > > > > >> > > may work for you.  If you do decide to have the operation I
> > > hope
> > > > > >> > > everything will go well for you.  If you have any more
> > > questions
> > > > > >> > please
> > > > > >> > > do not hesitate to ask.
> > > > > >> > >
> > > > > >> > > Jan
> > > > > >> > >
> > > > > >> > >
> > > > > >> > >
> > > > > >> > > Linda Wagner wrote:
> > > > > >> > >
> > > > > >> > > > Kim,
> > > > > >> > > >
> > > > > >> > > > How old were you when you had your achilles tendons
> > > lengthened?
> > > > > >> > What
> > > > > >> > > > was your recovery like?
> > > > > >> > > >
> > > > > >> > > > Linda
> > > > > >> > >
> > > > > >
> > > >
> >

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