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Subject:
From:
Kendall David Corbett <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Mon, 9 May 2005 11:59:11 -0600
Content-Type:
text/plain
Parts/Attachments:
text/plain (121 lines)
Kathy Jo,

As Ken and Bobby said, CP isn't something you "get over."  Your
statement reminded me of some "well meaning 'friends'" of my mom when I
was in school.  They were positive that if my/her faith were strong
enough, that I could be "normal."  I've got two major problems with
that.

1.      I think I was and am pretty much normal, even if I do use a
wheelchair.  I did "normal" things other kids did, although maybe a
little differently;
2.      G_d probably had (and has) other things in mind for me than
testing my faith (or my mom's faith, for that matter) with my
disability.  I'm not sure what those things are, but I think if I do the
best I can with what I've got, G_d will be OK with that.   

As far as "getting over CP," I think we learn better ways to cope with
the challenges that we encounter, whether they be physical obstacles, or
the attitudes of others.  I've learned to just ignore people like my
mom's former "friends," because it's just not worth the effort to try
and educate some people.  I spend a _lot_ of time personally and
professionally working with little kids on disability awareness
activities, because they seem to be the most receptive.  That doesn't
mean I ignore older kids and adults, but I give them about three chances
and move on.  

You said the first IL center you checked out was "too expensive."  Get
in touch with the folks at the Waismann Center, and find out if they
have someone who can help you to develop a plan to achieve the level of
independence you'd like.  Here's contact info.

Waisman Center 
University of Wisconsin-Madison 
1500 Highland Ave 
Madison, WI 53705-2280 
Main Phone:  608-263-1656 
Main Fax:  608-263-0529 
Website:  http://www.waisman.wisc.edu/ 

Carl Durocher can get you in touch with the right folks at Waismann,

Carl Durocher
608-265-2544
[log in to unmask]

and Linda Rowley can give you other contacts throughout Wisconsin

Linda Rowley, LPN, BS
608-263-5973
[log in to unmask]

 
         
 

Kendall Corbett

An unreasonable man (but my wife says that's redundant!)

The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all
progress depends on the unreasonable man.
-George Bernard Shaw 1856-1950

-----Original Message-----
From: Bobby Greer [mailto:[log in to unmask]] 
Sent: Sunday, May 08, 2005 3:44 PM
To: [log in to unmask]
Subject: Re: new member intro and some well-meant comments...

Kathy Jo,

    Acceptance is action and action is an ongoing process.
For example, if you let others "decide for you", that is not action it's
giving up. Action is looking into where you might want to stay and
making a
decision. You speak of "accepting CP" as if it were an event, but it is
not,
it is a lifetime process.

Bobby
----- Original Message -----
From: "ken barber" <[log in to unmask]>
Newsgroups: bit.listserv.c-palsy
To: <[log in to unmask]>
Sent: Sunday, May 08, 2005 5:02 PM
Subject: Re: new member intro and some well-meant comments...


>   i said "is it true?" have you gotten over cp? maybe
> you should pay attention to some of the email you get.
>
>    you do not just out grow cp. its not an allergy.
>
> --- Kathy Jo Pink <[log in to unmask]> wrote:
> > Huh?
> >
> >
> >
> >>
> >
> > ken barber wrote:
> >
> > >well, has it been true?
> > >
> > >--- Kathy Jo Pink <[log in to unmask]> wrote:
> > >
> >> From
> > >>the time I was age
> > >>ten to age twenty-nine, everyday I was told that I
> > >>would walk and get
> > >>over C.P. later in my life...
> > >>
> > >>Kathy Jo Pink
> >
>
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