C-PALSY Archives

Cerebral Palsy List

C-PALSY@LISTSERV.ICORS.ORG

Options: Use Forum View

Use Monospaced Font
Show Text Part by Default
Show All Mail Headers

Message: [<< First] [< Prev] [Next >] [Last >>]
Topic: [<< First] [< Prev] [Next >] [Last >>]
Author: [<< First] [< Prev] [Next >] [Last >>]

Print Reply
Subject:
From:
"Barber, Kenneth L." <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Mon, 1 Jul 2002 06:49:45 -0400
Content-Type:
text/plain
Parts/Attachments:
text/plain (67 lines)
yes, cper's all have problems with aging and i do not think there is any
intention of leaving anyone out.

-----Original Message-----
From: Salkin Kathleen [mailto:[log in to unmask]]
Sent: Saturday, June 29, 2002 10:15 PM
To: [log in to unmask]
Subject: Re: New web site idea


That was just a term, Pam, not meant to be exclusive.  I'm a "walking
wounded," now in a wheelchair.  What Kyle meant, I think, is that we're all
walking (or rolling) around, aging with symptoms that doctors can't or won't
see as related to CP, because we're no longer children.

Kat

----- Original Message -----
From: "Pam Dahl" <[log in to unmask]>
Newsgroups: bit.listserv.c-palsy
To: <[log in to unmask]>
Sent: Saturday, June 29, 2002 10:10 PM
Subject: Re: New web site idea


> Though my cp is more involved, I'm experiencing the same stuff as I age:
> increased spasticity, PAIN, decreased function.....  You walkies have lots
> of company in us wheelies. I don't think it was your intent, but I
wouldn't
> want the site to focus just on walkies. This "syndrome" is happening
across
> the board.
>
> Pam
>
> >
> > By "walking wounded" (phrase is growing on me) I mean those of us who
were
> > ambulatory and independent during our youth and early adulthood.  You
all
> > know my story: fit and athletic through my mid-thirties and then Bang!
> Ten
> > years later I can barely get from point A to point B.
> >
> > Lots of folks come to mind offhand:  Bobby, Kat, Ken, me, Rayna, the
> > Jennifers, etc.  That's just from "our" little village.  There are a lot
> > more besides us.
> >
> > Sound like an idea?  Kat, could you get back to me on the Yahoo site?  I
> > would like to make sure its easily accessible.
> >
> > Thanks!
> >
> > -Kyle
> >
> > -----Original Message-----
> > From: Salkin Kathleen
> > To: [log in to unmask]
> > Sent: 6/28/02 5:41 PM
> > Subject: Re: Rough go right now...
> >
> > Kyle, we could always use my Yahoo site, cpadults.  And I've got website
> > space via my ISP I can use.
> >
> > Kat
> >

ATOM RSS1 RSS2