Hi!  My name is Kathy Jo Pink .  I was born with Cerebral Palsy.  I am
36 years old.  I have felt anger, frustration , emotional pain etc
towards my disability. Coping is very difficult .  if you want to
e-mail me, my e-mail is [log in to unmask]













On 11/20/07, Tammi Hart <[log in to unmask]> wrote:
> Hi,
> My name is Tammi and I have a two year daughter with CP.  It's been almost
> two years since we were told that she had CP and we have (Husband and I)
> have been moving every since.  She goes to thearpy four times a week, not
> to mention what we have to do at home.  Our daughter is totally dependent.
> It takes her from an hour to an hour and a half to eat (any advice on how to
> speed up feeding).  I've noticed lately that I haven't really had time to
> take in
> are way of life.  I've been in reactive mold since learning of her disorder.
>  I've
> internalize my anger, pain, frustration, and fear and know it is starting to
> hunt
> me.  I am stressed, my hair is falling out, and I'm exhausted.  I'm seeing a
> thearpist and working on the said issues, however, I've noticed how deep my
> pain is.  Being a parent of a special needs child is overwhelming and very
> challenging.  It seems like I'm always fighting the government and
> healthcare
> insurance for what is rightful mine/hers.
>
> Lately, I've been so exhausted and feeling like I am headed for a breakdown.
>
> Any advice on how to cope and regain my strength?  I need to accept and
> move on and I'm not doing that in a timly manner.
>
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