Stronger language: you should see my first response to Chester.
We weren't TOLD, we aren't HEARD. Went until 46 yrs. without a clue my
body could change for the worse.
My CP is/was mostly in my arms. Otherwise healthy and energetic. Lived
a full, exciting, enjoyable life.
Problems then? Sure. Mistakes? Of course. Success? Absolutely.
Hey! I still want more.
There's just far less of ME.
ISM
'Stranger in a Strange Body"
----- Original Message -----
From: "Cleveland, Kyle E." <[log in to unmask]>
To: "'I. Stephen Margolis'" <[log in to unmask]>;
Sent: Tuesday, November 07, 2000 3:17 PM
Subject: RE: A Few Guinea Pigs Please
> Even stronger language, Steve: Most of us were TOLD chronic pain was
not
> going to be a factor. Chester's what...early 20's? I had the world
by its
> collective cajones then, too.
>
> -----Original Message-----
> From: I. Stephen Margolis [mailto:[log in to unmask]]
> Sent: Tuesday, November 07, 2000 3:02 PM
> To: [log in to unmask]
> Subject: Re: A Few Guinea Pigs Please
>
>
> You ought to run for President, Chester.
>
> Most of us didn't "think" chronic pain was going to happen to us. You
> think you're not going to get old?
>
> ISM
> 'Stranger in a Strange Body".
>
>
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of Chester Worwa
> Sent: Tuesday, November 07, 2000 2:07 PM
> To: [log in to unmask]
> Subject: Re: A Few Guinea Pigs Please
>
> I don't do any of it and I feel, great 99.9% of the
> time. I think people are as old as they think they
> are, nothing else.
>
> --- Carla MacInnis <[log in to unmask]> wrote:
> > Hi all you Pains in the Neck,
> >
> > I want to invite you to participate in a little
> > test. Nothing drastic. Just
> > something I think will help those of you
> > experiencing back, neck and shoulder
> > pain. Aging with cerebral palsy is a real pain, but
> > it doesn't have to be
> > tremendously so if you have a plan.
> >
> > Begin, ASAP, taking 500-700mg of Vit C daily. It's
> > a natural
> > anti-inflammatory. Reduce the inflammation and you
> > concurrently reducing
> > pain/spasming. Start taking extra calcium -
> > 250-300mg daily.Maintaining bone
> > density lessens risk of fractures. Introduce
> > magnesium at 300-400mg daily (helps
> > with fatigue, and acts as a natural sleep aid) You
> > can take cal-mag in the
> > morning (found in most drug stores), and a magnesium
> > tablet at night. Magnesium
> > also helps with heart problems (arrthymia, etc).
> > With all of this, drink 6-8
> > glasses of water daily. You need to lubricate those
> > joints and tissues.
> >
> > Do this for one full month, and get back to me
> > with your findings, then I can
> > report our findings on the cp link on my web site.
> >
> > I've been doing this for years and feel great
> > 99.9% of the time :)
> >
> > Cheers!
> >
> > Carla
> >
> > "Cleveland, Kyle E." wrote:
> >
> > > So what do we do, Ken? I've been fighting this
> > severe pain thing for five
> > > years straight, been poked, prodded, scoped,
> > stuck, MRI'd--you name it. No
> > > closer to day-to-day relief than when I started.
> > I firmly believe the MDs
> > > wish we (adults) would just all go away.
> > >
> > > -Kyle
> > >
> > > -----Original Message-----
> > > From: Barber, Kenneth L. [mailto:[log in to unmask]]
> > > Sent: Tuesday, November 07, 2000 1:06 PM
> > > To: [log in to unmask]
> > > Subject: Re: A Pain in the Neck
> > >
> > > in addition to scholiosis i have a spinal
> > sternosis (degeneration of the
> > > spine) 2 herniated disk at c3 and c7 in the neck.
> > i had it pegged, but, docs
> > > don't seem to have a clue after being told in
> > plain english. i have
> > > "unexplained" pain in my arms, sholders hands,
> > they must have crap for
> > > brains.
> > >
> > > -----Original Message-----
> > > From: Cleveland, Kyle E.
> > [mailto:[log in to unmask]]
> > > Sent: Tuesday, November 07, 2000 1:08 PM
> > > To: [log in to unmask]
> > > Subject: Re: A Pain in the Neck
> > >
> > > Oh, shit, Steve. I don't like this at all.
> > >
> > > -Kyle
> > >
> > > -----Original Message-----
> > > From: I. S. Margolis
> > [mailto:[log in to unmask]]
> > > Sent: Tuesday, November 07, 2000 12:35 PM
> > > To: [log in to unmask]
> > > Subject: A Pain in the Neck
> > >
> > > My friend "A" has Cerebral Palsy. He is
> > experiencing cervical and
> > > spinal problems, as I have.
> > >
> > > In the Philly area I know many people with CP.
> > Several are experiencing
> > > comparable problems. So far I am the only one of
> > us to have incurred
> > > severe paralysis of the arms and legs because my
> > doctors and I failed to
> > > understand that my spinal cord was being injured.
> > >
> > > Wonder if our CP aggravates spinal cord injury?
> > Seems like an outbreak
> > > here.
> > >
> > > My friendly alert. Be aware!
> > >
> > > ISM
> > > 'Stranger in a Strange Body"
> > >
> > > ----- Original Message -----(Much edited by ISM)
> > >
> > > Sent: Saturday, October 28, 2000 9:39 PM
> > >
> > > Subject: Medical Update
> > >
> > > > Hi:
> > > >
> > > >I am on a new medication to control some of the
> > disconfort and
> > > tingling and pain I've been experiencing in my
> > shoulders and arms. The
> > > medication (Ultram 50mg) does make me very tired
> > (I am taking it only
> > > once a day insread of up to three times as
> > needed). I'm thinking about
> > > going to the phramacy to have the pills cut in
> > half and take it twice a
> > > day so i won't feel so tired. IT does control
> > the pain and tingling.
> > > >
> > > > It looks like I will have the cervical spine
> > surgery ...I really have
> > > no choice in the matter/ My doctor, and three
> > other doctors too,
> > > have said that if I don't get the surgery I will
> > continue to weaken and
> > > have falls more often. And the more I have
> > these initimate affairs
> > > with the sifdrealks and in my apartment I am
> > putting myself at risk for
> > > greater injury. THe spine surgeon and the rehab
> > doctor have both told
> > > me independently that I could have a bad fall and
> > risk becoming a
> > > quadreplegic. Soo... looks llike I'm in for an
> > "overhaul" of sorts,
> > > Meanwhile. I'm still using a bone stimulator to
> > heal my foot and the hip
> > > surgery (remember that?) has been put on the back
> > burner while they
> > > deal with my cervical spine. I am scheduled to
> > have a stress test the
> > > day after the elections. So... I'll be at the
> > polls!!!
> > >
> > > > Thanks, again for listening.
> > > >
> > > > A.
>
|
