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St. John's University Cerebral Palsy List
Date:
Wed, 1 Nov 2000 17:29:27 EST
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Oh my Anee, what a time you've had!  I hope you are going to be doing okay
now.  I also wish I could share my neurologist with you.  I almost feel
guilty because he's so great.  I've read so many stories about the
"not-so-greats" and "downright lousies," and I know that I've really been
blessed.

It's hard when you have memories of bad medical experiences.  You need to be
able to trust your doctor's skills, knowledge and abilities.  That trust is
hard won the second time around.

Betty

In a message dated 11/01/2000 10:33:25 AM Eastern Standard Time, [log in to unmask]
writes:

> Hi Everyone-
>
>  I have had a really tough month.  In fact I just dropped me econ class
>  yesterday.  I am going to try and make a long story simi-short.  They put
me
>  on Atenolol for my bp like 3 or 4 weeks ago and then I went to being
>  extreemly spastic.  So tony scraped the atenolol and put me on Zestril
along
>  with the Hydroclorothyzide that I was already taking but I was so spastic
>  that he had to put me on diazapam (Valium), because I was almost tipping my
>  wheelchair over sideways.  We were going to consult a nurologist about all
> of
>  this but then I had a major anxiety atack about going to a nuro because of
>  all the bad experiences I have had in the past with specialists.  Infact we
>  were having to medicate so much for the anxiety problem that it wiped out
> the
>  spastisty problem so what would be the point of going to a nurologist for
>  spastisty if there was no spastisty (this was last week--friday).  Anyway
>  last tuesday I talked to Billy who is my FP in texas and updated him on the
>  situation and he sugested a few meds for the spastisty to discuss with Tony
>  which I did this past friday.  So Dr. Joseph has now put me on colazapam (
> not
>  shure I spelled that right).  The huge spasams are still not compleetly
gone
>  but  they are better then they were.  Needless to say my joints are not to
>  happy about all the spasticity. Anyway am going back to see Dr. Joseph on
> the
>  7th of November--or sooner if need be.
>
>  Needless to say that is why you have not seen me on the list in ages.  I
>  think this is getting better.  Hay at least we finaly have my blood
pressure
>  down it was like 120/70 friday-- of course the funny thing about valuium is
>  it will also lower blood pressure and I had taken 10mg 2 times a day for 2
>  days because of anxiety (in addition to my hypertension meds) before they
>  took that reading.  So question is is it really down or was it just all
that
>  valium.  Trick or Treet?
>
>  Yours,
>  Anee
>
>


Betty
aut viam inveniam aut faciam
"I will either find a way or make one."

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