Kathy Jo, maybe you need to get a new case manager? what is REM?
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Please ask your Congressperson to vote FOR the MICASSA bill, this
will allow medicaid funds to pay for community supports
instead of isolating the person in a nursing home or institution.
HR 910 is the bill number
Senate version of MiCASSA (S 401).
Oakland Mayor's Commission on People with disabilities
~Tamar Mag Raine~
[log in to unmask]
IM: tamarmag48
Yahoo IM Tamarmag56
> [Original Message]
> From: Kathy Jo Pink <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 5/10/2005 1:39:48 PM
> Subject: Re: new member intro and some well-meant comments...
>
> Mag,
>
>
>
> it was NOT an Independent Living Center. It was R.E.M. I get my
> funding from my county. The county is saying no, we can't afford
> R.E.M. R.E.M. was perfect! I met with my Independent Living Center
> last fall and I have my social Worker from the county that I live in and
> the Independent Living Center Specialist said she should be helping me
> and she isn't. (Besides Cornerstone.)
>
>
>
> Kathy
>
>
>
>
>
>
>
>
>
>
>
> Tamar Raine wrote:
>
> >Independent Living centers usually are funded by the Federal
government,
> >so, I don't understand what you mean by it being too expensive.
> >
> >Mag
> >
> >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >Please ask your Congressperson to vote FOR the MICASSA bill, this
> >will allow medicaid funds to pay for community supports
> >instead of isolating the person in a nursing home or institution.
> >HR 910 is the bill number
> >Senate version of MiCASSA (S 401).
> >
> >Oakland Mayor's Commission on People with disabilities
> >~Tamar Mag Raine~
> >[log in to unmask]
> >IM: tamarmag48
> >Yahoo IM Tamarmag56
> >
> >
> >
> >
> >>[Original Message]
> >>From: Kendall David Corbett <[log in to unmask]>
> >>To: <[log in to unmask]>
> >>Date: 5/9/2005 11:00:43 AM
> >>Subject: Re: new member intro and some well-meant comments...
> >>
> >>Kathy Jo,
> >>
> >>As Ken and Bobby said, CP isn't something you "get over." Your
> >>statement reminded me of some "well meaning 'friends'" of my mom when I
> >>was in school. They were positive that if my/her faith were strong
> >>enough, that I could be "normal." I've got two major problems with
> >>that.
> >>
> >>1. I think I was and am pretty much normal, even if I do use a
> >>wheelchair. I did "normal" things other kids did, although maybe a
> >>little differently;
> >>2. G_d probably had (and has) other things in mind for me than
> >>testing my faith (or my mom's faith, for that matter) with my
> >>disability. I'm not sure what those things are, but I think if I do the
> >>best I can with what I've got, G_d will be OK with that. =20
> >>
> >>As far as "getting over CP," I think we learn better ways to cope with
> >>the challenges that we encounter, whether they be physical obstacles, or
> >>the attitudes of others. I've learned to just ignore people like my
> >>mom's former "friends," because it's just not worth the effort to try
> >>and educate some people. I spend a _lot_ of time personally and
> >>professionally working with little kids on disability awareness
> >>activities, because they seem to be the most receptive. That doesn't
> >>mean I ignore older kids and adults, but I give them about three chances
> >>and move on. =20
> >>
> >>You said the first IL center you checked out was "too expensive." Get
> >>in touch with the folks at the Waismann Center, and find out if they
> >>have someone who can help you to develop a plan to achieve the level of
> >>independence you'd like. Here's contact info.
> >>
> >>Waisman Center=20
> >>University of Wisconsin-Madison=20
> >>1500 Highland Ave=20
> >>Madison, WI 53705-2280=20
> >>Main Phone: 608-263-1656=20
> >>Main Fax: 608-263-0529=20
> >>Website: http://www.waisman.wisc.edu/=20
> >>
> >>Carl Durocher can get you in touch with the right folks at Waismann,
> >>
> >>Carl Durocher
> >>608-265-2544
> >>[log in to unmask]
> >>
> >>and Linda Rowley can give you other contacts throughout Wisconsin
> >>
> >>Linda Rowley, LPN, BS
> >>608-263-5973
> >>[log in to unmask]
> >>
> >>=20
> >> =20
> >>=20
> >>
> >>Kendall Corbett
> >>
> >>An unreasonable man (but my wife says that's redundant!)
> >>
> >>The reasonable man adapts himself to the world; the unreasonable one
> >>persists in trying to adapt the world to himself. Therefore, all
> >>progress depends on the unreasonable man.
> >>-George Bernard Shaw 1856-1950
> >>
> >>-----Original Message-----
> >>From: Bobby Greer [mailto:[log in to unmask]]=20
> >>Sent: Sunday, May 08, 2005 3:44 PM
> >>To: [log in to unmask]
> >>Subject: Re: new member intro and some well-meant comments...
> >>
> >>Kathy Jo,
> >>
> >> Acceptance is action and action is an ongoing process.
> >>For example, if you let others "decide for you", that is not action it's
> >>giving up. Action is looking into where you might want to stay and
> >>making a
> >>decision. You speak of "accepting CP" as if it were an event, but it is
> >>not,
> >>it is a lifetime process.
> >>
> >>Bobby
> >>----- Original Message -----
> >>From: "ken barber" <[log in to unmask]>
> >>Newsgroups: bit.listserv.c-palsy
> >>To: <[log in to unmask]>
> >>Sent: Sunday, May 08, 2005 5:02 PM
> >>Subject: Re: new member intro and some well-meant comments...
> >>
> >>
> >>
> >>
> >>> i said "is it true?" have you gotten over cp? maybe
> >>>you should pay attention to some of the email you get.
> >>>
> >>> you do not just out grow cp. its not an allergy.
> >>>
> >>>--- Kathy Jo Pink <[log in to unmask]> wrote:
> >>>
> >>>
> >>>>Huh?
> >>>>
> >>>>
> >>>>
> >>>>
> >>>>
> >>>>ken barber wrote:
> >>>>
> >>>>
> >>>>
> >>>>>well, has it been true?
> >>>>>
> >>>>>--- Kathy Jo Pink <[log in to unmask]> wrote:
> >>>>>
> >>>>>From
> >>>>>
> >>>>>
> >>>>>>the time I was age
> >>>>>>ten to age twenty-nine, everyday I was told that I
> >>>>>>would walk and get
> >>>>>>over C.P. later in my life...
> >>>>>>
> >>>>>>Kathy Jo Pink
> >>>>>>
> >>>>>>
> >>>__________________________________________________
> >>>Do You Yahoo!?
> >>>Tired of spam? Yahoo! Mail has the best spam protection around
> >>>http://mail.yahoo.com
> >>>
> >>>
> >
> >
> >
> >
|
