Anthony,
Luckily in Wyoming, hurricanes aren't a big concern! ;-{)} For those
people who were displaced by Katrina, or any disaster, refills could be
an issue, though. The refill process is fairly straightforward, so I'd
think someone could go to a hospital if necessary, and get a refill
there, as long as they had access to the dosage information for a
refill. Janet's neurologist is in Cheyenne (about 50 miles away, so
we'll get a backup plan in place with a doctor locally, since the road
to Cheyenne has been known to get closed by snowstorms.
Kendall
An unreasonable man (but my wife says that's redundant!)
The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all
progress depends on the unreasonable man.
-George Bernard Shaw 1856-1950
-----Original Message-----
From: Kendall David Corbett [mailto:[log in to unmask]]
Sent: Monday, March 13, 2006 1:22 PM
To: [log in to unmask]
Subject: Re: New to list - intensive suit therapy - hand surgery?
Anthony,
I'd think so, for two reasons:
1. Janet's doc said that there can be some nasty withdrawal symptoms if
the pump runs out, and
2. The pump could be damaged.
Kendall
An unreasonable man (but my wife says that's redundant!)
The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all
progress depends on the unreasonable man.
-George Bernard Shaw 1856-1950
-----Original Message-----
From: Anthony Arnold [mailto:[log in to unmask]]
Sent: Monday, March 13, 2006 1:10 PM
To: [log in to unmask]
Subject: Re: New to list - intensive suit therapy - hand surgery?
I don't need a Baclofen pump personally (thank the lord), but I have
some
friends who have seen some reasonable success with theirs, but I do want
to
throw out a question. How important is it that Baclofen patients have
their
refills on a timely manner, let's say I was displaced by a hurricane,
would
locating a doctor to refill it be a high concern?
Thanks,
Anthony
Visit my website at www.anthonyarnold.net
-----Original Message-----
From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf
Of
Kendall David Corbett
Sent: Monday, March 13, 2006 1:28 PM
To: [log in to unmask]
Subject: Re: New to list - intensive suit therapy - hand surgery?
Janet had surgery on the 3rd for a Baclofen pump; it's only been 10
days, and she hasn't reached her final dosage level yet, but it appears
to be having a noticeable positive impact on both her spasticity and
dystonia. We found a great doctor in Colorado Springs, who'd done his
residency and fellowship at the two places in the country that have
published the most research on Baclofen pumps in people with CP,
particularly adults.
I belong to another list for people with hydrocephalus, and there's a
mix of people with the condition and parents of kids with hydro, and
most people include a brief descriptor of why they're on the list in
their siglines. I think it's kind of nice, because as new people join,
it's kind of like a built in introduction to them. As folks stay on the
list, they get to know us as individuals, and the sigline descriptor is
not as necessary.
I see your point though, Kat; it's kind of like people are still meeting
our (or a child's) disability first. I just reread my sigline for
C-Palsy, and it doesn't mention Janet's or my CP at all.
Kendall=20
An unreasonable man (but my wife says that's redundant!)
The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all
progress depends on the unreasonable man.
-George Bernard Shaw 1856-1950
-----Original Message-----
From: [log in to unmask] [mailto:[log in to unmask]]=20
Sent: Monday, March 13, 2006 11:59 AM
To: [log in to unmask]
Subject: Re: New to list - intensive suit therapy - hand surgery?
What kind of surgery?
And as an aside, what's with the labels all the parents of CPs put in
their
sigs? I know y'all have your sigs on the parents' lists, but frankly I
find those a wee bit offensive. Just my tuppence.
Kat
Original Message:
-----------------
From: lynette smilelaughgiggle [log in to unmask]
Date: Mon, 13 Mar 2006 12:44:03 -0600
To: [log in to unmask]
Subject: Re: New to list - intensive suit therapy - hand surgery?
Hi All,
My son has upper body spasticity and we are looking at surgery on his
hands.=20
Has anyone experienced this with their child? Cody has a baclofen
pump,=20
got us through puberty....still a never ending battle.
Blessings,
Lynette LaScala, mom to Cody (post near drowning,CP)=20
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