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Subject:
From:
"Barber, Kenneth L." <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Mon, 14 Feb 2000 07:15:56 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (83 lines)
a pill splitter,   i need one. can you still buy them? where?

-----Original Message-----
From: Schaeffer [mailto:[log in to unmask]]
Sent: Sunday, February 13, 2000 5:42 PM
To: [log in to unmask]
Subject: Re: Rantings about Society


My disability is visible. My daughter's epilepsy developed at 18 years. She
ripped up her driver's license right in front of me. She is teaching English
in Japan and recently had a seizure at work. She has been getting night
seizures and is not aware when they happen. She is taking appropriate
medication. She dosed off and went into a seizure. How do you deal with
this? She was ambulanced to a hospital, unconscious.

She was on a trip with a friend and had a night seizure.

I gave her a little pill splitter as I didn't like her splitting pills with
a sharp knife. Practical mom. She has been using the splitter since and
never replaced it.

Joyce
----- Original Message -----
From: Betty Alfred <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, February 13, 2000 10:56 AM
Subject: Re: Rantings about Society


> In a message dated 02/12/2000 8:10:52 PM Eastern Standard Time,
> [log in to unmask] writes:
>
> << What about those of us that have
>  multiple disabilities that are not easily seen ?  >>
>
> This is something that has been on my mind ever since I first read your
post
> Deborah.
>
> I imagine it's very hard to have invisible disabilities.  No one readily
> recognizes them and I wonder if the disability community acknowledges this
> the way it should?  I didn't when I replied at first, I just targeted what
> hit me the hardest -- the business of being angry at society.  I am and I
> explained my reasons, but chronic pain from a condition that nobody can
see
> means that you might suffer alone.  If you say something about it you are
> whining, if you don't you're isolated.
>
> But your point is valid for those who do have anger at others because of
> their disabilities.  I didn't mean to dismiss this.  If I hate my
disability
> (which I don't) it's my problem, not the rest of the world's.  If I get
mad
> at another women because she walks that "runway walk" and I can't, I've
got
> the problem not her.
>
> Sometimes I also get the impression that parents who have children with
> disabilities are invisible too.  They go through changes in old
relationships
> with friends after their child is born or diagnosed, and this must be a
very
> hard thing to experience.
>
> I'm wondering if it's easy or hard to find a comfortable place in the
> disability community when you're the parent?  Do you feel accepted or left
> out?  I sometimes want to ask, "What do you want from the disability
> community?"  Are we serving your needs as a parent, or are we doing
something
> wrong that we need to fix?
>
> I've learned a lot from Trisha, and Randy & Cindy (of Our-Kids fame),
about
> the invisible disability issue, the parent issue, and also about the
height
> issue from Trisha.  People do make fun of that all the time and it's such
a
> stupid thing to do.  It's just too stupid for words.
>
> Betty
>

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