kj, is there any reason you need somebody there at night?
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[log in to unmask]
How can we expect new results if we do what we've always done?
War is outdated for the 21st century!
> [Original Message]
> From: Kathy Jo Pink <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 8/3/2005 3:24:48 PM
> Subject: Re: FW: [Fwd: Re: I'm Back]
>
> Kendall,
>
>
>
> Under Community Based Programs, (MAPC & CIP) I can only get coverage
> from 7AM-10PM.
>
>
>
> Kathy Jo
>
>
>
>
>
>
>
>
>
> Kendall David Corbett wrote:
>
> >Kathy Jo,
> >
> >Mag's right. Back when I was working 1:1 with folks with disabilities
> >was shortly after the de-institutionalization movement got a good head
> >of steam, and Colorado was working on moving people into community
> >programs. After 1999, and the Olmstead Supreme Court decision, it has
> >been easier to get people into least restrictive environments.
> >
> >It is expensive, but in most cases, it's less expensive than 24/7 care
> >in a nursing home or similar setting. This is possible because the
> >staff in nursing home4s get paid more than the staff for most
> >disability providers. In '88 and '89, when I was doing direct staffing
> >for folks with disabilities, the minimum wage was increased from $3.85
> >an hour to $4.25 an hour, so everybody that started when I did got a
> >raise. A lot of states are now working to bring up the wages of their
> >direct support staff to a livable wage.
> >
> >A lot of the people receiving community based services are covered under
> >Medicaid Home and Community Based Waiver Services, because in addition
> >to being a better way for people to live (healthier, more independent),
> >it's less expensive. In Wyoming, the cost to house people in our one
> >remaining institution for people with disabilities is about 3X as much
> >as serving people in the community.
> >
> >My grandmother's health in the last two years of her life was so bad
> >that we had to put her in a nursing home, and it cost $4500.00 per
> >month. The average cost to serve someone in community programs in
> >Wyoming is around $2100.00 per month
> >
> >Kendall=20
> >
> >An unreasonable man (but my wife says that's redundant!)
> >
> >The reasonable man adapts himself to the world; the unreasonable one
> >persists in trying to adapt the world to himself. Therefore, all
> >progress depends on the unreasonable man.
> >
> >-George Bernard Shaw 1856-1950
> >
> >-----Original Message-----
> >From: Magenta Raine [mailto:[log in to unmask]]=20
> >Sent: Tuesday, August 02, 2005 12:24 PM
> >To: [log in to unmask]
> >Subject: Re: FW: [Fwd: Re: I'm Back]
> >
> >It is in their plans. It is their right and everybody's rights to live
> >in
> >the least restrictive environment.
> >
> >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >[log in to unmask]
> >How can we expect new results if we do what we've always done?
> >War is outdated for the 21st century!
> >
> >
> >
> >
> >>[Original Message]
> >>From: Kathy Jo Pink <[log in to unmask]>
> >>To: <[log in to unmask]>
> >>Date: 8/2/2005 6:47:36 AM
> >>Subject: Re: FW: [Fwd: Re: I'm Back]
> >>
> >>Kendall Corbet,
> >>
> >>
> >>
> >>How could these people afford 24/7 Care? Kathy Jo Pink
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >>Kendall David Corbett wrote:
> >>
> >>
> >>
> >>>Kathy Jo,=3D20
> >>>
> >>>Depending on the person you're working with to draw up a plan, they
> >>>
> >>>
> >may
> >
> >
> >>>use either term. In my work environment, a PCP deals more with how
> >>>things are now, and a PFP deals with how you'd like them to be.
> >>>
> >>>In the agency I worked for when I first got out of college, there
> >>>
> >>>
> >were a
> >
> >
> >>>couple of people who had 24/7 care. In general they were the people
> >>>with the most severe physical and/or cognitive disabilities; usually
> >>>they had a lot of seizures and so needed someone there in case they
> >>>
> >>>
> >had
> >
> >
> >>>a seizure.
> >>>
> >>>Kendall Corbett
> >>>
> >>>An unreasonable man (but my wife says that's redundant!)
> >>>
> >>>The reasonable man adapts himself to the world; the unreasonable one
> >>>persists in trying to adapt the world to himself. Therefore, all
> >>>progress depends on the unreasonable man.
> >>>
> >>>-George Bernard Shaw 1856-1950
> >>>
> >>>
> >>>-----Original Message-----
> >>>From: Kathy Pink [mailto:[log in to unmask]]=3D20
> >>>Sent: Monday, August 01, 2005 5:02 AM
> >>>To: [log in to unmask]
> >>>Subject: FW: [Fwd: Re: I'm Back]
> >>>
> >>>Is a PFP the same as Person-Centered Planning?Is there such a thing
> >>>
> >>>
> >as
> >
> >
> >>>one
> >>>to one twenty-four hour round-the-clock care? I know it would be
> >>>expensive
> >>>.
> >>>
> >>>
> >>>
> >>>Kathy Pink
> >>>
> >>>
> >>>
> >>>
> >>>
> >>>
> >>>
> >>>
> >>>
> >>>
> >>>
> >>>
> >>>
> >>>
> >>>
> >>>>From: Kathy Jo Pink <[log in to unmask]>
> >>>>To: [log in to unmask]
> >>>>Subject: [Fwd: Re: I'm Back]
> >>>>Date: Sun, 31 Jul 2005 08:15:16 -0500
> >>>>
> >>>>
> >>>>
> >>>>-------- Original Message --------
> >>>>Subject: Re: I'm Back
> >>>>Date: Tue, 19 Jul 2005 14:30:33 -0600
> >>>>From: Kendall David Corbett <[log in to unmask]>
> >>>>Reply-To: St. John's University Cerebral Palsy List
> >>>><[log in to unmask]>
> >>>>To: [log in to unmask]
> >>>>
> >>>>
> >>>>
> >>>>Kathy Jo said:
> >>>>
> >>>>
> >>>>
> >>>>
> >>>>
> >>>>>I don't have a plan to make it happen? Any ideas, anyone?
> >>>>>
> >>>>>
> >>>>>
> >>>>>
> >>>>Get in touch with Linda Rowley at the Waisman Center, and ask her
> >>>>
> >>>>
> >for
> >
> >
> >>>>info on personal futures planning, and someone close to Lancaster
> >>>>
> >>>>
> >that
> >
> >
> >>>>can help you put a PFP (personal future plan) together. I could
> >>>>
> >>>>
> >refer
> >
> >
> >>>>you to several people in Wyoming, but since you're in Wisconsin,
> >>>>
> >>>>
> >that
> >
> >
> >>>>won't work. Also, ask Linda about a program called "Partners in
> >>>>Policymaking." I think something like that would be immensely
> >>>>
> >>>>
> >helpful
> >
> >
> >>>>to you!
> >>>>
> >>>>Here are links to:
> >>>>
> >>>>1. The Waisman Center, and to Linda Rowley
> >>>>
> >>>>Waisman Center on Human Development=3D3D20
> >>>>University of Wisconsin-Madison=3D3D20
> >>>>1500 Highland Ave=3D3D20
> >>>>Madison, WI 53705-2280=3D3D20
> >>>>Main Phone: 608-263-1656=3D3D20
> >>>>Main Fax: 608-263-0529=3D3D20
> >>>>Website: http://www.waisman.wisc.edu/
> >>>>
> >>>>
> >>>>Family Village Internet Project
> >>>>Linda Rowley, LPN, BS
> >>>>608-263-5973
> >>>>[log in to unmask]
> >>>>http://www.familyvillage.wisc.edu/index.htmlx
> >>>>
> >>>>
> >>>>Jean Boehnen probably would have answers to your general questions
> >>>>
> >>>>
> >on
> >
> >
> >>>>CP:
> >>>>
> >>>>Cerebral Palsy Clinic
> >>>>Jean Boehnen, RN=3D3D09
> >>>>608-263-7335=3D3D09
> >>>>[log in to unmask]
> >>>>
> >>>>
> >>>>2. Personal Futures Planning,=3D3D20
> >>>>
> >>>>http://www.iidc.indiana.edu/cedir/pfplanbib.html
> >>>>
> >>>>The above link is a bibliography on person centered planning, which
> >>>>
> >>>>
> >is
> >
> >
> >>>>another name for personal futures planning.=3D3D20
> >>>>
> >>>>3. Partners in Policymaking, which got started in Minnesota.
> >>>>
> >>>>http://www.partnersinpolicymaking.com/
> >>>>
> >>>>Kendall Corbett
> >>>>
> >>>>An unreasonable man (but my wife says that's redundant!)
> >>>>
> >>>>The reasonable man adapts himself to the world; the unreasonable one
> >>>>persists in trying to adapt the world to himself. Therefore, all
> >>>>progress depends on the unreasonable man.
> >>>>
> >>>>-George Bernard Shaw 1856-1950
> >>>>
> >>>>
> >>>>-----Original Message-----
> >>>>From: Kathy Jo Pink [mailto:[log in to unmask]]=3D3D20
> >>>>Sent: Tuesday, July 19, 2005 11:20 AM
> >>>>To: [log in to unmask]
> >>>>Subject: Re: I'm Back
> >>>>
> >>>>
> >>>>I like living with my parents. I don't know what I want. I guess
> >>>>ideally , I want to live in my own place (apartment?). If that does
> >>>>
> >>>>
> >>>>
> >>>>
> >>>not
> >>>
> >>>
> >>>
> >>>
> >>>>work I will go to an adult family home, a group home, or a nuring
> >>>>
> >>>>
> >home
> >
> >
> >>>>(a nursing home would probably be my last choice.) I don't have a
> >>>>
> >>>>
> >plan
> >
> >
> >>>>to make it happen? Any ideas, anyone?
> >>>>
> >>>>
> >>>>
> >>>>
> >>>>
> >>>>
> >>>>
> >>>>
> >>>_________________________________________________________________
> >>>Don't just search. Find. Check out the new MSN Search!
> >>>http://search.msn.click-url.com/go/onm00200636ave/direct/01/
> >>>
> >>>
> >>>
> >>>
> >>>
> >>>
> >
> >
> >
> >
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