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St. John's University Cerebral Palsy List
Date:
Mon, 27 Mar 2000 08:09:34 -0600
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Hi,

One of my friends always says that I am a fighter.  Kathy





----- Original Message -----
From: Dina Dror <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, March 26, 2000 11:51 PM
Subject: Re: A Feeling Question for people who happen to live with Cerebral
Palsy


> Hi,
>
> If I didn't have CP, I wouldn't be the person that I am. I am a fighter. I
am
> a big believer in alternative therapies. Sometimes, I think that I have CP
so
> I can make a difference in the younger generation, having experienced what
I
> did and been through what I have.
>
> Since I haven't met too many people who have been through the alcohol
nerve
> block injections as a young child and the memories are very vivid in my
mind
> and always have been, I can tell the parents what it is like and why
muscular
> injections for spasticity aren't worth doing, and what is out there that
is
> worth trying. Since I experienced surgeries at a very young age, I can
tell
> what my experiences were like and help others to avoid that path. Since I
do
> work with alternative therapies, I can say what has worked for me and what
> else is out there to try.
>
> The more we voice our experiences, the sooner we make a bigger impact on
the
> medical profession and make real changes happen. I know from talking out
in
> the past few years to professionals, that there are a lot of doubts out
there
> about how effective surgery really is for spastic CP.
>
> As for my personal life, I don't usually have a problem with making
friends.
> I do have a very difficult time with dating because of my religious
beliefs
> and the community that I am involved in. I am still looking for the "right
> person" and hope to meet him soon.
>
> So I don't mind having CP, and I am certainly improving day by day. it's
my
> parent's attitude that is/was difficult to handle. I live a pretty normal
> life, tutor in Hebrew for the college, tutor various kids of different
ages
> in various subjects, go horseback riding 3 days a week, drive a normal car
> with a gas pedal extension because I am short, speak Hebrew and a little
bit
> of Yiddish. I love doing all kinds of arts and crafts, writing and
traveling.
> I am planning to go back to college to get a degree in Psychology. I help
a
> lot of people on line with various issues of daily life. I am doing
various
> alternative therapies such as Rolfing, Chiropractic treatments,
> Nutraceuticals, the Chi Machine, the NACD program, and EEG biofeedback and
> would like to do HBOT to see if it helps me or not.
>
> Hope this helps,
>
> Dina
>

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