Judi, Doctor John Loeser over at the University of Washington Pain Clinic
did my pump, and I think he can give you a good opinion. Call him at (206)
598-4282.

Dana and Gillis
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At 07:47 PM 11/17/99 -0500, you wrote:
>Hi!
>
>My name is Judi Kloper and I live in Oregon, along with my husband Peter
>Owens and three of our five kids.  The older two were adopted as older kids
>from India and now live out of the home; one lives in a group home.
>
>Our three at home are by birth, from India and from China.
>
>Our son, Dana, is now 17 1/2 yrs old, and came to us from India at 8 weeks
>old weighing just four pounds on arrival.  He is gorgeous, smart, charming,
>and has severe quad. spastic and athetoid CP.  He's a senior in high school
>and thinking about college.  This is a huge task we're starting on--exploring
>colleges and careers for a kid who is so very physically limited.
>
>Anyway, Dana has the baclofen pump (for 14 months now) and though he's had
>some improvement, it's not been near as wonderful as we had heard it'd been
>for others.  In fact, he has wanted it out.  He used to get botox injections,
>which helped for a while, but then it seemed that he needed to get injections
>more and more frequently.  He'd gone without them for about a year and just
>recently got some in his left leg cus of the pain he was having, but it only
>worked for a brief time.
>
>Last June Dana had hip surgery and hamstring release (that was in both legs,
>and just the left hip was operated on.)  While finally he doesn't have the
>hip pain he was having, he now has incredible pain in his left upper thigh.
>Can't move him from any position to another, in fact, just moving his left
>leg an inch or two causes incredible pain for him.  He continues to take
>Klonzapin (Clonipin?) at night, along with one ibuprofen.  The doctors at
>Shriners in Portland haven't come up with a reason for this or a "fix," and
>we are tired of going up there and saying the same thing, yet our son is in
>intense pain and he cannot, nor can we, go on like this.  This is supposed to
>be his senior year, which means good times as well as some learning
>times....but it's really been difficult for him to focus.
>
>Therefore, we would like to seek a second opinion.  If any of you in the
>Seattle area could recommend some physicians for us to see (orthopedic with
>specialty in CP and a neuroligist with specialty in CP, Baclofen, Botox, etc)
>I sure would appreciate it.
>
>Thanks so much.
>Judi