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Subject:
From:
Kathy Pink <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 2 Jul 2002 10:34:12 -0700
Content-Type:
text/plain
Parts/Attachments:
text/plain (90 lines)
I KNOW we all have to fight.





--- "Barber, Kenneth L." <[log in to unmask]> wrote:
> i think we all have to fight. i had the
> unforunate luck of a borderline
> bloodtest result as a teen of rheumatoid
> arthritis that was very decisively
> disproved after 30 something years. but when i
> started having my first
> tendon problems in 1981, it was so convienent
> for doctors to say "sure you
> have pain, you have rheumatoid arthritis." it
> was not until 1993 that i was
> ask if anybody had confirmed that diagnosis and
> it was debuncked. i had
> developed more injuried tendons and ligaments
> all over my body and no
> treatment at all except being told how lucky i
> was that my arthritis had not
> deformed my feet and hands ect, ect... blah
> blah. then al of a sudden one
> doctor saw the lifgt glimer and said i had
> tendonitis and ligament damage
> all over my body. did my carpel tunnel surgery
> promply retired and then i
> spent 5 years fighting to get to another doc
> that i thought could help. mean
> time not much treatment.
>   you are right something is rotten. you
> develope problems for 21 years, you
> get a referal to a doc who gives you mayber 21
> minutes to educate him to
> what your problems are. after the 21 minutes he
> tells you he is not the one
> you need and passes you to somebody else with
> another referal and so you get
> 21 minutes if you are lucky to take a shot at
> that guy. if you are lucky you
> get to wait only 2-3 months to see these people
> for that presious 21
> minutes. yes it is rotten.
>
> -----Original Message-----
> From: Rayna Lamb [mailto:[log in to unmask]]
> Sent: Monday, July 01, 2002 10:41 PM
> To: [log in to unmask]
> Subject: Re: What Do We Call This?
>
>
> Thanks mag, hugs, even cyber ones, help a lot.
> It's just a matter of
> plodding along till I get what I need.....
>
> Hey, is anyone else sick of having to put so
> much effort into
> get one's basic needs???  Something's rotten
> here when so many of us
> have to do this.  There's never enough energy
> left for figuring out
> what one WANTS in life.  Don't mind having to
> fight this hard - DO mind
> fighting tooth and nail and not GETTING
> anywhere. <mutter mutter>
>
> On Mon, Jul 01, 2002 at 06:51:36PM -0400,
> Magenta Raine wrote:
>     Rayna, so wish I could help.
>
>     But hugs will have to do for now.
>
>     Love,
>     Mag
>
>     ~~~~~~~~~~~~~~~~~~~~~~
>     If you already shop online, please take a
> look at my mall!
>     Why? Because we have over 500 stores with
> over 1 million items!
>     www.itilink.com/traine.iti


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