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Subject:
From:
Kathy Pink <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Thu, 4 Aug 2005 15:18:33 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (389 lines)
Mag, yes.











>From: Magenta Raine <[log in to unmask]>
>Reply-To: [log in to unmask]
>To: [log in to unmask]
>Subject: Re: FW: [Fwd: Re: I'm Back]
>Date: Wed, 3 Aug 2005 16:24:49 -0700
>
>kj, is there any reason you need somebody there at night?
>
>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>[log in to unmask]
>How can we expect new results if we do what we've always done?
>War is outdated for the 21st century!
>
>
> > [Original Message]
> > From: Kathy Jo Pink <[log in to unmask]>
> > To: <[log in to unmask]>
> > Date: 8/3/2005 3:24:48 PM
> > Subject: Re: FW: [Fwd: Re: I'm Back]
> >
> > Kendall,
> >
> >
> >
> > Under Community Based Programs, (MAPC & CIP) I can only get coverage
> > from 7AM-10PM.
> >
> >
> >
> > Kathy Jo
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >   Kendall David Corbett wrote:
> >
> > >Kathy Jo,
> > >
> > >Mag's right.  Back when I was working 1:1 with folks with disabilities
> > >was shortly after the de-institutionalization movement got a good head
> > >of steam, and Colorado was working on moving people into community
> > >programs.  After 1999, and the Olmstead Supreme Court decision, it has
> > >been easier to get people into least restrictive environments.
> > >
> > >It is expensive, but in most cases, it's less expensive than 24/7 care
> > >in a nursing home or similar setting.  This is possible because the
> > >staff in nursing home4s get paid more  than the staff for most
> > >disability providers.  In '88 and '89, when I was doing direct staffing
> > >for folks with disabilities, the minimum wage was increased from $3.85
> > >an hour to $4.25 an hour, so everybody that started when I did got a
> > >raise.  A lot of states are now working to bring up the wages of their
> > >direct support staff to a livable wage.
> > >
> > >A lot of the people receiving community based services are covered
>under
> > >Medicaid Home and Community Based Waiver Services, because in addition
> > >to being a better way for people to live (healthier, more independent),
> > >it's less expensive.  In Wyoming, the cost to house people in our one
> > >remaining institution for people with disabilities is about 3X as much
> > >as serving people in the community.
> > >
> > >My grandmother's health in the last two years of her life was so bad
> > >that we had to put her in a nursing home, and it cost $4500.00 per
> > >month.  The average cost to serve someone in community programs in
> > >Wyoming is around $2100.00 per month
> > >
> > >Kendall=20
> > >
> > >An unreasonable man (but my wife says that's redundant!)
> > >
> > >The reasonable man adapts himself to the world; the unreasonable one
> > >persists in trying to adapt the world to himself. Therefore, all
> > >progress depends on the unreasonable man.
> > >
> > >-George Bernard Shaw 1856-1950
> > >
> > >-----Original Message-----
> > >From: Magenta Raine [mailto:[log in to unmask]]=20
> > >Sent: Tuesday, August 02, 2005 12:24 PM
> > >To: [log in to unmask]
> > >Subject: Re: FW: [Fwd: Re: I'm Back]
> > >
> > >It is in their plans. It is their right and everybody's rights to live
> > >in
> > >the least restrictive environment.
> > >
> > >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> > >[log in to unmask]
> > >How can we expect new results if we do what we've always done?
> > >War is outdated for the 21st century!
> > >
> > >
> > >
> > >
> > >>[Original Message]
> > >>From: Kathy Jo Pink <[log in to unmask]>
> > >>To: <[log in to unmask]>
> > >>Date: 8/2/2005 6:47:36 AM
> > >>Subject: Re: FW: [Fwd: Re: I'm Back]
> > >>
> > >>Kendall Corbet,
> > >>
> > >>
> > >>
> > >>How could these people afford 24/7 Care?  Kathy Jo Pink
> > >>
> > >>
> > >>
> > >>
> > >>
> > >>
> > >>
> > >>
> > >>
> > >>
> > >>
> > >>Kendall David Corbett wrote:
> > >>
> > >>
> > >>
> > >>>Kathy Jo,=3D20
> > >>>
> > >>>Depending on the person you're working with to draw up a plan, they
> > >>>
> > >>>
> > >may
> > >
> > >
> > >>>use either term.  In my work environment, a PCP deals more with how
> > >>>things are now, and a PFP deals with how you'd like them to be.
> > >>>
> > >>>In the agency I worked for when I first got out of college, there
> > >>>
> > >>>
> > >were a
> > >
> > >
> > >>>couple of people who had 24/7 care.  In general they were the people
> > >>>with the most severe physical and/or cognitive disabilities; usually
> > >>>they had a lot of seizures and so needed someone there in case they
> > >>>
> > >>>
> > >had
> > >
> > >
> > >>>a seizure.
> > >>>
> > >>>Kendall Corbett
> > >>>
> > >>>An unreasonable man (but my wife says that's redundant!)
> > >>>
> > >>>The reasonable man adapts himself to the world; the unreasonable one
> > >>>persists in trying to adapt the world to himself. Therefore, all
> > >>>progress depends on the unreasonable man.
> > >>>
> > >>>-George Bernard Shaw 1856-1950
> > >>>
> > >>>
> > >>>-----Original Message-----
> > >>>From: Kathy Pink [mailto:[log in to unmask]]=3D20
> > >>>Sent: Monday, August 01, 2005 5:02 AM
> > >>>To: [log in to unmask]
> > >>>Subject: FW: [Fwd: Re: I'm Back]
> > >>>
> > >>>Is a PFP the same as Person-Centered Planning?Is there such a thing
> > >>>
> > >>>
> > >as
> > >
> > >
> > >>>one
> > >>>to one twenty-four hour round-the-clock care?  I know it would be
> > >>>expensive
> > >>>.
> > >>>
> > >>>
> > >>>
> > >>>Kathy Pink
> > >>>
> > >>>
> > >>>
> > >>>
> > >>>
> > >>>
> > >>>
> > >>>
> > >>>
> > >>>
> > >>>
> > >>>
> > >>>
> > >>>
> > >>>
> > >>>>From: Kathy Jo Pink <[log in to unmask]>
> > >>>>To: [log in to unmask]
> > >>>>Subject: [Fwd: Re: I'm Back]
> > >>>>Date: Sun, 31 Jul 2005 08:15:16 -0500
> > >>>>
> > >>>>
> > >>>>
> > >>>>-------- Original Message --------
> > >>>>Subject:       Re: I'm Back
> > >>>>Date:  Tue, 19 Jul 2005 14:30:33 -0600
> > >>>>From:  Kendall David Corbett <[log in to unmask]>
> > >>>>Reply-To:      St. John's University Cerebral Palsy List
> > >>>><[log in to unmask]>
> > >>>>To:    [log in to unmask]
> > >>>>
> > >>>>
> > >>>>
> > >>>>Kathy Jo said:
> > >>>>
> > >>>>
> > >>>>
> > >>>>
> > >>>>
> > >>>>>I don't have a plan to make it happen?  Any ideas, anyone?
> > >>>>>
> > >>>>>
> > >>>>>
> > >>>>>
> > >>>>Get in touch with Linda Rowley at the Waisman Center, and ask her
> > >>>>
> > >>>>
> > >for
> > >
> > >
> > >>>>info on personal futures planning, and someone close to Lancaster
> > >>>>
> > >>>>
> > >that
> > >
> > >
> > >>>>can help you put a PFP (personal future plan) together.  I could
> > >>>>
> > >>>>
> > >refer
> > >
> > >
> > >>>>you to several people in Wyoming, but since you're in Wisconsin,
> > >>>>
> > >>>>
> > >that
> > >
> > >
> > >>>>won't work.  Also, ask Linda about a program called "Partners in
> > >>>>Policymaking."  I think something like that would be immensely
> > >>>>
> > >>>>
> > >helpful
> > >
> > >
> > >>>>to you!
> > >>>>
> > >>>>Here are links to:
> > >>>>
> > >>>>1. The Waisman Center, and to Linda Rowley
> > >>>>
> > >>>>Waisman Center on Human Development=3D3D20
> > >>>>University of Wisconsin-Madison=3D3D20
> > >>>>1500 Highland Ave=3D3D20
> > >>>>Madison, WI 53705-2280=3D3D20
> > >>>>Main Phone:  608-263-1656=3D3D20
> > >>>>Main Fax:  608-263-0529=3D3D20
> > >>>>Website:  http://www.waisman.wisc.edu/
> > >>>>
> > >>>>
> > >>>>Family Village Internet Project
> > >>>>Linda Rowley, LPN, BS
> > >>>>608-263-5973
> > >>>>[log in to unmask]
> > >>>>http://www.familyvillage.wisc.edu/index.htmlx
> > >>>>
> > >>>>
> > >>>>Jean Boehnen probably would have answers to your general questions
> > >>>>
> > >>>>
> > >on
> > >
> > >
> > >>>>CP:
> > >>>>
> > >>>>Cerebral Palsy Clinic
> > >>>>Jean Boehnen, RN=3D3D09
> > >>>>608-263-7335=3D3D09
> > >>>>[log in to unmask]
> > >>>>
> > >>>>
> > >>>>2. Personal Futures Planning,=3D3D20
> > >>>>
> > >>>>http://www.iidc.indiana.edu/cedir/pfplanbib.html
> > >>>>
> > >>>>The above link is a bibliography on person centered planning, which
> > >>>>
> > >>>>
> > >is
> > >
> > >
> > >>>>another name for personal futures planning.=3D3D20
> > >>>>
> > >>>>3. Partners in Policymaking, which got started in Minnesota.
> > >>>>
> > >>>>http://www.partnersinpolicymaking.com/
> > >>>>
> > >>>>Kendall Corbett
> > >>>>
> > >>>>An unreasonable man (but my wife says that's redundant!)
> > >>>>
> > >>>>The reasonable man adapts himself to the world; the unreasonable one
> > >>>>persists in trying to adapt the world to himself. Therefore, all
> > >>>>progress depends on the unreasonable man.
> > >>>>
> > >>>>-George Bernard Shaw 1856-1950
> > >>>>
> > >>>>
> > >>>>-----Original Message-----
> > >>>>From: Kathy Jo Pink [mailto:[log in to unmask]]=3D3D20
> > >>>>Sent: Tuesday, July 19, 2005 11:20 AM
> > >>>>To: [log in to unmask]
> > >>>>Subject: Re: I'm Back
> > >>>>
> > >>>>
> > >>>>I like living with my parents.  I don't know what I want.  I guess
> > >>>>ideally , I want to live in my own place (apartment?).  If that does
> > >>>>
> > >>>>
> > >>>>
> > >>>>
> > >>>not
> > >>>
> > >>>
> > >>>
> > >>>
> > >>>>work I will go to an adult family home, a group home, or a nuring
> > >>>>
> > >>>>
> > >home
> > >
> > >
> > >>>>(a nursing home would probably be my last choice.)  I don't have a
> > >>>>
> > >>>>
> > >plan
> > >
> > >
> > >>>>to make it happen?  Any ideas, anyone?
> > >>>>
> > >>>>
> > >>>>
> > >>>>
> > >>>>
> > >>>>
> > >>>>
> > >>>>
> > >>>_________________________________________________________________
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> > >>>http://search.msn.click-url.com/go/onm00200636ave/direct/01/
> > >>>
> > >>>
> > >>>
> > >>>
> > >>>
> > >>>
> > >
> > >
> > >
> > >

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