HI Joy,
Am not sure where you are saying Sarah has Turner's or just could
develop it. If she has Turners then I think the period will be a moot point.
Amber's GodMother has Turners. Assuming it reacts with in reason
approxiamately the same then Cathy altho she has female parts - Had to have
hormone therapy to cause the secondary sexual charartistics. Without the
that she would have stayed like a child. I can ask Cathy if she will talk
with you about her experiences, just let me know. Oh and I haven't talked to
you while - everything peachy keen? Where is that meeting this summer?
Brightest Blessings
Trisha
> Nancy-My daughter Sarah is 12. Still wears diapers, has CP, & is in a
> wheelchair full time, Has cataracts ( 1 was removed last summer & has an
> inplant) I dread what we will do when she gets her period. She is 98
> pounds--so very hard for me to lift..her dad helps with diaper
> changes..but
> says he draws the line. No underarm hair yet...and we did shave 1 time
> for
> a big family party...but she is telling me many of her friends now shave
> their legs..I would have to do it for her. I certainly don't have the
> answers..Sarah also is mosaic for Turners--so we weren't sure we would
> have
> to deal with these issues...but they are arriving.....Joy
>
>
> ----------
> >From: "Nancy C. Butala" <[log in to unmask]>
> >To: [log in to unmask]
> >Subject: NEWCOMER
> >Date: Mon, May 29, 2000, 6:23 PM
> >
>
> >Hi! I am a newcomer to this list. I live in Michigan and have
> 10-year-old
> >twin girls (born at 26 weeks), both with disabilities. For some
> background,
> >Ashley (twin A) was born weighing 1 lb. 6 oz. She is blind in her right
> eye
> >and very near-sighted in her left. She has mild CP on her left side.
> She is
> >currently in 3rd grade and is doing very well, considering she is
> learning
> >Braille. She does get PT at school and tries so very hard to do things
> just
> >like the other kids. She is having difficulty learning how to ride a
> bike.
> >She admits to her fear of falling off (I truly am fearful that she won't
> be
> >able to see cars). My other daughter, Breanne (twin B) weighed in at 1
> lb.
> >15 oz. She is severely multiply impaired--has CP on her right side,
> blind in
> >both eyes, 2 shunts for Hydracephalus (had a trache from the time she was
> an
> >infant but was decannulated in September 1992); seizure tendency (has
> only
> >had 2 to speak of). Breanne can't do for herself and is in a wheelchair.
> >The good news is that she has made alot of progress, but now that the
> girls
> >are getting older, I am trying to prepare myself for puberty.
> >
> >In a nutshell, here is my question . . . In Ashley's case, she will be
> able
> >to learn how to shave and take care of her own hygiene. In Breanne's
> case,
> >however, I am wondering about the shaving. She has gotten a headstart on
> her
> >sister with the hair growth, so now I'm thinking "My gosh, it's coming!".
> >For anyone out there, how did you deal with puberty? My husband is also
> a
> >wreck about having to deal with it. Will I need to shave Breanne's arms
> and
> >legs as all women do as they get older?
> >
> >Any insight is greatly appreciated. I look forward to hearing from some
> of
> >you.
> >
> >Nancy Butala
> >Michigan
> >
> >
> >
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