Welcome, Laura!


Kathy Jo Pink 
E-mail addresses: [log in to unmask] , [log in to unmask], and [log in to unmask] 

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Pogo Nickname : perkypinkypink 






> Date: Mon, 13 Sep 2010 09:13:56 -0700
> From: [log in to unmask]
> To: [log in to unmask]
> 
> Thanks Kathy! I am excited to find a real group, ha, ha.  I have been looking 
> for awhile and have been very frustrated by the number of attorney firms that 
> pose as CP support groups.  Let me introduce myself to everyone.  My name is 
> Laura and I am a mom to 4 wonderful kids.  My youngest son, Seth (14 months old 
> now) was born 16 weeks early at a whole whopping 1 lb 7 oz.  Due to his extreme 
> prematurity he had several medical problems at birth including Intraventricular 
> hemorrhage (brain bleeds) grade 3 and grade 4 with resulting hydrocephalus.  
> Three weeks ago he was diagnosed with CP.  He has low muscle tone in his neck, 
> upper torso and lower extremeties with spasms below the knees, although no 
> contractures.   While I knew from the time he was born that getting a diagnosis 
> of CP was a very real possibility, having it actually said has made me an 
> emotional train wreck.  Adding to that, just trying to take all the new 
> information in, acquiring equipment, starting new therapies is it's own 
> challenge.  I got divorced while my son was still in the NICU so there's nobody 
> for me to talk to about worries and concerns.  It's even more frustrating for me 
> at times because I've been a nurse for several years now, but have no experience 
> in this area.  There's so much information, some very conflicting, to sort 
> through.  
> 
> 
> Wow, that sounds like I'm ranting doesn't it?!  I am excited to get to know 
> everyone, and I hope nobody minds me picking your brains for information.  And 
> maybe letting me vent once in awhile.   I promise not to make it a habit, lol.  
> It really is kind of a relief just knowing there's others out there that are 
> affected by the same thing, in some way, and joining together to support one 
> another.  
> 
> 
> I look forward to talking with you all more.
> 
> Laura
> 
> 
> 
>       
> 
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