p.s. who is your feld. teacher?

Tamar Mag Raine
[log in to unmask]

The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself.
Therefore, all progress depends on the unreasonable man.
-George Bernard Shaw 1856-1950

IM: tamarmag48
Oakland Mayor's Commission on People with disabilities


> [Original Message]
> From: pam <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 7/28/2004 4:12:57 PM
> Subject: Re: Hello to all and a question for Joy
>
> yes, i do get feldy lessons once or twice a week. very helpful in delaying
> the progress of my hip problem, and in many other body issues.
>
> how is the home buying process going?
>
> Pam
>
>
> > Pam, have you considered feldenkrais therapy to help you be more at ease
> in
> > your body?
> >
> >
> >
> > Tamar Mag Raine
> > [log in to unmask]
> >
> > The reasonable man adapts himself to the world; the unreasonable one
> > persists in trying to adapt the world to himself. Therefore, all
> > progress depends on the unreasonable man.
> > -George Bernard Shaw 1856-1950
> >
> > IM: tamarmag48
> > Oakland Mayor's Commission on People with disabilities
> >
> >
> > > [Original Message]
> > > From: pam <[log in to unmask]>
> > > To: <[log in to unmask]>
> > > Date: 7/15/2004 12:19:59 PM
> > > Subject: Re: Hello to all and a question for Joy
> > >
> > > Hi Chester,
> > >
> > > Sorry to be so long in replying - email's hard to get to sometimes
these
> > > days.
> > >
> > > My hip's too far gone for a brace to be helpful. Thanks for the idea
> > though.
> > >
> > > Pam
> > >
> > >
> > >
> > > > What about trying a hip brace first?
> > > >
> > > >
> > > > Chester
> > > >
> > > > --- pam <[log in to unmask]> wrote:
> > > > > Hi all,
> > > > >
> > > > > I've been back on the list for a few weeks after
> > > > > being away for several =
> > > > > months because of work, ISP problems, etc.  It's
> > > > > been good to see the =
> > > > > list active again, both in support and political
> > > > > banter.  It's a rare =
> > > > > list that can go from arguing in one post and real
> > > > > support in the next.
> > > > >
> > > > > I write now in hopes of getting some advice on a CP
> > > > > related health =
> > > > > issue.  My left hip is dislocated and grinds in and
> > > > > out of what's left =
> > > > > of the acetabalum hundreds of times a day.  I get
> > > > > into the good old CP =
> > > > > pain-spasm-pain-spasm cycle, and it's really not
> > > > > fun.  To break the =
> > > > > cycle  I'm taking major meds to calm my spasticity,
> > > > > which in turn make =
> > > > > me sleepy.  Just within the last few days I've found
> > > > > a pattern of taking =
> > > > > meds that leaves me moderately comfortable for a
> > > > > good part of the day =
> > > > > and cognitively on for a good part of the day.  But
> > > > > I can't keep going =
> > > > > like this, my body is tearing itself apart.  I'm
> > > > > afraid to think about =
> > > > > what the meds are doing to my liver.  I'm not able
> > > > > to work.  grumble =
> > > > > grumble grumble...
> > > > >
> > > > > I do have hope.  I have a great community of people
> > > > > who are pulling for =
> > > > > me and praying for me and helping in whatever ways
> > > > > they can.  My husband =
> > > > > has been very supportive.  And I found a good
> > > > > doctor, which as you know =
> > > > > is no small feat for an adult with CP.  This guy is
> > > > > brilliant and honest =
> > > > > and kind. =20
> > > > >
> > > > > He's offered me several options, one is hip fusion,
> > > > > which with my sounds =
> > > > > horrible, given the athetosis that's mixed with my
> > > > > spasticity.  The =
> > > > > other is called the modified Girdlestone procedure.
> > > > > ~Joy~, I seem to =
> > > > > remember you having this procedure the summer before
> > > > > your freshman year. =
> > > > >  I remember you had much pain afterwards that you
> > > > > didn't expect.  I'm =
> > > > > wondering how you're doing now.  Are you in pain?
> > > > > Do you weight bear at =
> > > > > all?  How is your flexibility in your hips?  And the
> > > > > big question again, =
> > > > > how is your level of pain??
> > > > >
> > > > > This doc is proposing to remove the top third of my
> > > > > femur; to wrap both =
> > > > > the new end of the femur and the acetabulum with the
> > > > > muscles that won't =
> > > > > be used any more to keep the ball in the socket; and
> > > > > using an external =
> > > > > fixator for 6 weeks, allow scar tissue to form
> > > > > between the femur and the =
> > > > > pelvis. The external fixator would screw into my
> > > > > remaining femur and my =
> > > > > pelvis, the screws would come out of my skin and be
> > > > > attached to a metal =
> > > > > bar which would hold the bones apart (I'm getting
> > > > > used to the idea, but =
> > > > > at first it sounded pretty horrible). If I remember
> > > > > right, Joy, you were =
> > > > > in traction for 6 weeks, this doc doesn't want to
> > > > > risk my getting =
> > > > > pneumonia.
> > > > >
> > > > > I would really appreciate anything you could tell
> > > > > me, either on the list =
> > > > > or privately, about your experience with this
> > > > > surgery.
> > > > >
> > > > > Thanks very much.
> > > > >
> > > > > Pam
> > > > > [log in to unmask]
> > > > >
> > > >
> > > >
> > > >
> > > >
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> >