oh, by the way, i know nothing of chester's age.
> -----Original Message-----
> From: Trisha Cummings [SMTP:[log in to unmask]]
> Sent: Tuesday, March 09, 1999 9:34 AM
> To: [log in to unmask]
> Subject: Re: [ Re: Quiet list]
>
> Ken,
>
> Perhaps his parents just want him to be responsible. As in making
> the decision, buying the items, and taking care of it in the morning. We
> always have a choice with our kids no matter how old they are of making
> and
> doing things for them - or letting them do that part and just supporting
> their decisions. The 19 year old I inherited wants me to make the all
> decisions and do the work and she gets the benefits - with my own child -
> I
> told her long ago - when she had to chose between two things and was
> having
> a hard time and said - You do make the decision Mommy - you're the adult.
> I
> came back but it was her life and her decision. If she didn't learn to
> make
> decision when she was young and the decision was only one toy or another -
> how would she ever be able to make decisions when she is older and the
> decisions are more serious. I always remember she is child first then has
> CP - not CP masquarding as a child!! I have notice with the temper bits
> and
> the startle thing everyone wants to place the responisbilty on the CP -
> and
> leaves out the fact that some of this stuff is just plain human. I have
> watched Amber struggle with her inabilities since she was a small baby and
> never have I heard her blame anything on it. In fact many a time she has
> gotten down on herself for not doing something perfectly like the other
> kids
> and I remind she has done the best she could and not everyone does
> everything great at everything - functional body or not. I think we hit
> my
> soapbox - sorry!!
>
>
> Parenting a special needs kid or young adult is not a picnic - You get
> all the regular parenting stuff plus the special needs stuff - plus the
> fact
> everytime you think you have it down pat. The kid hits a new stage or
> age!!!
> We parents being old fogys ( NOT) tend to be one step behind!!! Frankly,
> if
> kids didn't whine we where unfair we would lose our villian status - and
> what fun is there in that. LOL!! Besides - we haven't heard his parents
> point.
>
> Brightest Blessings
> Trisha
> -----
> From: Barber, Kenneth L. <[log in to unmask]>
>
> >i'm sorry. i don't mean to be critical of people like your parents, but,
> >part of being a big boy is making accomodations to take care of problems.
> it
> >is not you that needs to grow up.
> >please don't flame me for this statement, it is not given as a statement
> to
> >inflame anyone. it just that if anyone should be willing to make
> >accomodations, it should be family who would care. imho
> >
> >> -----Original Message-----
> >> From: Chester M Worwa [SMTP:[log in to unmask]]
> >> Sent: Tuesday, March 09, 1999 8:17 AM
> >> To: [log in to unmask]
> >> Subject: Re: [ Re: Quiet list]
> >>
> >> I have tried asking for that, but people like my parents say that I am
> a
> >> big boy and can take myself. However, I would prefer something,
> >> even though the bathroom is right accross from my bedroom.
> >>
> >> On Tue, 9 Mar 1999, Barber, Kenneth L. wrote:
> >>
> >> > oh, a suggestion. i do not know if it is feasible for you, but, would
> a
> >> > bedside container help until morning?
> >> >
> >> > > -----Original Message-----
> >> > > From: Chester M Worwa [SMTP:[log in to unmask]]
> >> > > Sent: Tuesday, March 09, 1999 7:07 AM
> >> > > To: [log in to unmask]
> >> > > Subject: Re: [ Re: Quiet list]
> >> > >
> >> > > I thought it ment something to do with going to the bathroom,
> because
> >> > > after 3 hours for me and I have to go and with braces on at night
> it
> >> is
> >> > > not fun.
> >> > >
> >> > >
> >> > > On Tue, 9 Mar 1999, Barber, Kenneth L. wrote:
> >> > >
> >> > > > actually, rigimortis (spelling) is what happens when people dies
> and
> >> > > gets
> >> > > > stiff. that's where the term of calling a corpse a stiff came
> from.
> >> i
> >> > > was
> >> > > > playing with the word to indicate how stiff and sore i get after
> >> just a
> >> > > > little while in bed.
> >> > > >
> >> > > > > -----Original Message-----
> >> > > > > From: Michelle Montminy [SMTP:[log in to unmask]]
> >> > > > > Sent: Monday, March 08, 1999 3:45 PM
> >> > > > > To: [log in to unmask]
> >> > > > > Subject: Re: [ Re: Quiet list]
> >> > > > >
> >> > > > > what's rigimortus?
> >> > > > > -----Original Message-----
> >> > > > > From: Barber, Kenneth L. <[log in to unmask]>
> >> > > > > To: [log in to unmask]
> <[log in to unmask]>
> >> > > > > Date: Wednesday, March 03, 1999 10:54 AM
> >> > > > > Subject: Re: [ Re: Quiet list]
> >> > > > >
> >> > > > >
> >> > > > > >i usually can't stay in bed much longer than 3-4 before
> >> rigamortus
> >> > > sets
> >> > > > > up.
> >> > > > > >
> >> > > > > >> -----Original Message-----
> >> > > > > >> From: Jan Nottmeier [SMTP:[log in to unmask]]
> >> > > > > >> Sent: Tuesday, March 02, 1999 3:31 PM
> >> > > > > >> To: [log in to unmask]
> >> > > > > >> Subject: Re: [ Re: Quiet list]
> >> > > > > >>
> >> > > > > >> Yes, I did but I could only stand it for about 3-4 hours
> max.
> >> > > > > >>
> >> > > > > >>
> >> > > > > >> Chester M Worwa wrote:
> >> > > > > >>
> >> > > > > >> > Did you ever try wearing the braces at night?
> >> > > > > >> >
> >> > > > > >> > On Mon, 1 Mar 1999, Jan Nottmeier wrote:
> >> > > > > >> >
> >> > > > > >> > > Hi Linda,
> >> > > > > >> > >
> >> > > > > >> > > Saw your post and I thought I should respond. I had my
> >> tendons
> >> > > > > >> > > lengthened behind my knee about ten years ago. I had my
> >> > > tendons
> >> > > > > >> > > lengthened in Germany because the health care insurance
> >> covered
> >> > > it
> >> > > > > >> > over
> >> > > > > >> > > there at that time But that is another story. Anyway
> >> before I
> >> > > left
> >> > > > > >> > for
> >> > > > > >> > > Europe my doctor in the United States told me to expect
> to
> >> be
> >> > > > > >> > > hospitalized 4-5 days, had I elected to have the
> operation
> >> in
> >> > > the
> >> > > > > >> > US.
> >> > > > > >> > >
> >> > > > > >> > > Right after my surgery I had major cramps for about ten
> >> days
> >> > > while
> >> > > > > I
> >> > > > > >> > was
> >> > > > > >> > > in a hospital in Germany .As for recovery time, my legs
> >> were in
> >> > > a
> >> > > > > >> > cast
> >> > > > > >> > > for about 6 weeks, followed by 2 months of exercises to
> get
> >> the
> >> > > > > >> > strength
> >> > > > > >> > > back into my legs. After spending 6 weeks in a cast I
> was
> >> > > unable
> >> > > > > to
> >> > > > > >> >
> >> > > > > >> > > lift my legs out of the cast after it was cut open.
> >> > > > > >> > >
> >> > > > > >> > > Following the surgery I could really tell a difference I
> >> was
> >> > > able
> >> > > > > to
> >> > > > > >> >
> >> > > > > >> > > strengthen my legs out and could stand up tall. After
> >> about
> >> > > seven
> >> > > > > >> > > months however, my legs started to get weaker again. My
> >> doctor
> >> > > at
> >> > > > > >> > the
> >> > > > > >> > > time said that I should start wearing braces again to
> >> > > straighten
> >> > > > > out
> >> > > > > >> > my
> >> > > > > >> > > lags again. But I had trouble sleeping because they
> really
> >> > > hurt at
> >> > > > > >> > > times. I should have most likely tried to fight through
> >> the
> >> > > > > >> > discomfort
> >> > > > > >> > > but I didn't. Now my walking is getting worse and worse
> >> with
> >> > > time,
> >> > > > > >> > but
> >> > > > > >> > > I don't know if I want to go back to that doctor.
> >> > > > > >> > >
> >> > > > > >> > > I didn't mean to discourage you, but I wanted you to
> know
> >> the
> >> > > > > >> > possible
> >> > > > > >> > > advantages and possible drawbacks both short term and
> long
> >> > > term.
> >> > > > > >> > But I
> >> > > > > >> > > am not a doctor, I was telling my personal experiences,
> so
> >> the
> >> > > > > >> > surgery
> >> > > > > >> > > may work for you. If you do decide to have the
> operation
> I
> >> > > hope
> >> > > > > >> > > everything will go well for you. If you have any more
> >> > > questions
> >> > > > > >> > please
> >> > > > > >> > > do not hesitate to ask.
> >> > > > > >> > >
> >> > > > > >> > > Jan
> >> > > > > >> > >
> >> > > > > >> > >
> >> > > > > >> > >
> >> > > > > >> > > Linda Wagner wrote:
> >> > > > > >> > >
> >> > > > > >> > > > Kim,
> >> > > > > >> > > >
> >> > > > > >> > > > How old were you when you had your achilles tendons
> >> > > lengthened?
> >> > > > > >> > What
> >> > > > > >> > > > was your recovery like?
> >> > > > > >> > > >
> >> > > > > >> > > > Linda
> >> > > > > >> > >
> >> > > > > >
> >> > > >
> >> >
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