you are very right kat. she needs a very good doc. in
my first post in reply, i said "i am no dr." i wish i
could help her find a good doc, but, as we all know
sometimes  finding a doctor is very hard. 

--- Kathleen Salkin <[log in to unmask]> wrote:

> I'd like to remind everyone that CP is not the only
> cause of muscle  
> stiffness - there are lot of neurological conditions
> that cause  
> muscle stiffness - MS, MD, Parkinson's, PPS, and
> dystonia, to name a  
> few.  Even not moving around enough can cause one's
> muscles to grow  
> stiff with disuse.  It's extremely important that
> Mary Katherine get  
> a definite diagnosis.  None of on this list (that
> I'm aware of) are  
> medical doctors.
> 
> 
> Kat
> 
> 
> On 2 Sep 2006, at 21:31, Tamar Raine wrote:
> 
> Hi mary ,
> It really sounds like you have cp, and Itotally
> relate to how you  
> describe
> walking. I used to walk like a cp-person, but in my
> 30's it became
> extremely painful and hard to walk. when i turned
> 40, I got my first
> powerchair, which is great, a year ago I injured
> myself, thought it  
> might
> be sciatica, but xrays finally show that it is just
> extremely tight hip
> muscles pulling my hip the wrong way. I am in the
> works to see if a
> baclofen pump will ease the hip and leg muscles.
> another disability that
> looks like cp is dystonia, you might want to read
> about that.
> 
> good luck, keep us posted.
> 
> Mag
> 
> Tamar Raine
> [log in to unmask]
> Now serving tee shirts! and soon to come, Maui
> posters and other items;
> www.cafepress.com/tamarmag
> 
> 
> > [Original Message]
> > From: Mary Katherine Powers <[log in to unmask]>
> > To: <[log in to unmask]>
> > Date: 9/2/2006 6:12:01 PM
> > Subject: other questions
> >
> > Hello,
> >
> > I hope you don't mind yet another email.  there
> are a couple of other
> > odd things I do and I was wondering if anyone can
> relate:
> >
> > a lot of the time, I don't like to have my feet
> flat on the ground.  I
> > feel a pull that is uncomfortable in my lower
> legs.  so when I'm in  
> > the
> > bathroom, I usually lean on the floor with the
> balls of my feet and  
> > sit
> > with my feet pointed upwards.  when I'm sitting at
> the computer, I
> > often end up pulling my legs back and curling my
> toes under, or  
> > sitting
> > with my lower legs bent so that the balls of my
> feet touch the floor
> > and the rest of my feet is up at an angle. 
> sometimes I'll sit with  
> > the
> > outside of my feet touching the floor, and
> everything else lifted up.
> > these things are more comfortable than sitting
> with my feet flat on  
> > the
> > floor.  I do have flat feet and I wear orthotics
> for them.
> >
> > maybe I've gotten really used to having poor
> posture and with the
> > stretching, I'll sit in a more standard position. 
> it pulls too  
> > much on
> > my legs.  I guess the flat feet could account for
> it?
> >
> > I toe-walked for a while as a child and my mother
> talked to the doctor
> > about it, but he said a lot of kids do it.  But I
> was told by a PT  
> > that
> > I was essentially still doing it, because she said
> something about my
> > ankles not coming up all the way so I was pushed
> forward on my  
> > toes.  I
> > don't understand what she meant because I put my
> heel on the floor.
> > but she said I'm pushed forward too much, or
> something like that.  she
> > said I was out of alignment due to bone structure.
>  I'm completely
> > clueless on that.
> >
> > I also walked late - after age 2.  I walked on my
> knees for a year.  I
> > forget whether I said that already.
> >
> > can anyone else relate to not wanting to put your
> feet flat on the
> > ground?  in shoes with the orthotics in them, it
> is easier.  just  
> > in my
> > bare feet, I don't like it.
> >
> > also, when I said I have to fight my legs to walk
> a lot of the time,
> > that is how it is.  when I try to walk faster, my
> back stiffens up and
> > my legs "lock up" if anyone knows what that means.
>  the resistance  
> > gets
> > harder.
> >
> > I know this may all sound very trivial.  I'm sorry
> if I'm offending
> > anyone by posting these emails - it's just there
> is really no one to
> > talk to who understands this stuff, and some of
> the things I do  
> > seem so
> > minor that I don't bother mentioning them for fear
> a doctor will tell
> > me I'm being ridiculous or oversensitive, or
> something like that.
> >
> > thanks
> >
> > Mary Katherine
> >
>
______________________________________________________________________
> 
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