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Subject:
From:
"Cynthia O. Coleman" <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 28 Sep 1999 18:10:45 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (44 lines)
Bobby Greer wrote:

> Dianne
>
>         I have to go along with David Spencer. You have to be the jusge of the
> cost/benefit ratio  to child child and family. Each family is different.
> The three questions posed by David are excellent to ask yourself?
>
> Bobby
>
> >-----Original Message-----
> >From: Magenta Raine <[log in to unmask]>
> ><snip>
> >who else could know what it's like to be
> >>dragged to pt, st, or ot after school?
> ><snip>
> >
> >
> >My would-be toddler has CP, and he has a busy schedule of doctor's visits,
> >PT, OT, and Infant Stim/ST.  My question is, how much is too much?  It
> >already feels like we're on a treadmill.  Evan strenuously objects to much
> >of his PT, but I'm chalking that up to a precocious start on the terrible
> >twos.  How would you advise your parents, if they had it to do again?
> >
> >Dianne
> >Mom to Reese 6 nda and Evan 17 mo spastic diplegia fundo gtube

Dianne,
Talk with your PT. I am a pediatric PT, and I can tell you fron 12 years of
experience, A child changes in relation to Carryover in play from their therapy
NOT from frequency of visits to the therapist.  If your therapist is teaching you
ways to position your child to work the right muscle groups and relax the wrong
muscle groups, your child should be showing changes in his motor skills...and
begin to use these positions for play on his own. As for objecting to PT
activities, sometimes working in positions that a child has not mastered (sitting
up, standing) are scary at first.  Good therapists use favorite toys or music to
help with this.  But you are of course right, a two year old says No when he
meansd yes just because he likes to use his newly understood independence.  If you
are doing so much therapy it takes away from family time, I would discuss less
frequent, more specific goal oriented "bursts" or therapy. For example, can we
work on kneel to stand 3x a week and take a break?  We call them "therapy
vacations"  good for the child and a blessed break for Mom!
Cindy

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