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Subject:
Re: Controversial Topic...
From:
Kathy Pink <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Sun, 13 Sep 2009 17:51:30 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (344 lines) 
I think I do.  



Kathy Jo Pink 
E-mail addresses: [log in to unmask] , [log in to unmask], and [log in to unmask] 

MSN/HotMail IM: [log in to unmask] 

Pogo Nickname : perkypinkypink 










 EMAILING FOR THE GREATER GOOD
Join me
 

> Date: Sat, 12 Sep 2009 15:42:58 -0400
> From: [log in to unmask]
> Subject: Re: Controversial Topic...
> To: [log in to unmask]
> 
> Kathy, do you know how to search on Google?
> 
> ---- Original message ----
> >Date: Sat, 12 Sep 2009 14:13:25 -0500
> >From: Kathy Pink <[log in to unmask]> 
> >Subject: Re: Controversial Topic... 
> >To: [log in to unmask]
> >
> >Does a baclofen pump have a WebSite, and, if, so, what is it? ? 
> >
> >
> >
> >Kathy Jo Pink 
> >E-mail addresses: [log in to unmask] , [log in to unmask], and [log in to unmask] 
> >
> >MSN/HotMail IM: [log in to unmask] 
> >
> >Pogo Nickname : perkypinkypink 
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > EMAILING FOR THE GREATER GOOD
> >Join me
> > 
> >
> >> Date: Fri, 11 Sep 2009 21:34:32 -0400
> >> From: [log in to unmask]
> >> Subject: Re: Controversial Topic...
> >> To: [log in to unmask]
> >> 
> >> Kathy. a baclofenm pump is s medical instrument a doctor puts in you that delivers a precise amount of baclofen to the brain or nervpous system. 
> >> 
> >> ---- Original message ----
> >> >Date: Fri, 11 Sep 2009 19:28:10 -0500
> >> >From: Kathy Pink <[log in to unmask]> 
> >> >Subject: Re: Controversial Topic... 
> >> >To: [log in to unmask]
> >> >
> >> >Mag, 
> >> >
> >> > 
> >> >
> >> >What's a baclofen pump? (I know I'll probably get flamed for asking that question because I have asked it before.) Why are you taking Lexapro? I used to to take it for depression . 
> >> >
> >> >
> >> >
> >> >
> >> >Kathy Jo Pink 
> >> >E-mail addresses: [log in to unmask] , [log in to unmask], and [log in to unmask] 
> >> >
> >> >MSN/HotMail IM: [log in to unmask] 
> >> >
> >> >Pogo Nickname : perkypinkypink 
> >> >
> >> >
> >> >
> >> >
> >> >
> >> >
> >> >
> >> >
> >> >
> >> >
> >> > EMAILING FOR THE GREATER GOOD
> >> >Join me
> >> > 
> >> >
> >> >> Date: Thu, 10 Sep 2009 18:23:17 -0700
> >> >> From: [log in to unmask]
> >> >> Subject: Re: Controversial Topic...
> >> >> To: [log in to unmask]
> >> >> 
> >> >> sorry guys, i find it difficult to figure out my health plan, let alone discuss it.
> >> >> 
> >> >> We should email ken on facebook, he is there playing games. 
> >> >> 
> >> >> My health needs - well, i saw the bill for refilling my baclofen pump, outrageous! $5,000! It lasts 6 months, and i'm still at less than half a miligram per day. hopefully with my new hip in october, i'll be able to lower the dose.
> >> >> 
> >> >> I'm concerned right now because for a couple weeks my heart seems to be pulsing faster and louder... i have, with my docs ok, lowered my dose of lexapro as that can sometimes do it, but so can baclofen. I began having panic attacks when we raised the baclofen dose over 300 mcg. I'm having an ekg soon, but I might ask to get it sooner. 
> >> >> 
> >> >> I have a collarbone that is dislocated, does not hurt much, but i'm worried because it's going into my throat, and i have to occasionally push food around (from the outside) so I don't choke. Anybody else have this?
> >> >> 
> >> >> the PT i had over a year and half ago was only partialy paid by medicare. and they are still billing them. I could really use pt on my arm, i have a lot of pain, and can't do art like this. 
> >> >> 
> >> >> A berkeley woman who had a stroke, and related epilepsy went to cuba for 2 months, zshe got much better after many hours of pt, acupuncture, etc, plus macrobiotic diet! it's truly maddening to note as linda does, that poor countries who are not at war, have this amazing healthcare for everybody in their country, while we -who-have so much material wealth are going w/out! 
> >> >> 
> >> >> 
> >> >> Thanks,
> >> >> Tamar
> >> >> 
> >> >> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >> >> Tamar Mag Raine 
> >> >> 
> >> >> To see my newest articles: 
> >> >> 
> >> >> http://www.submityourarticle.com/articles/Tamar%20Mag-Raine-6019/
> >> >> 
> >> >> [log in to unmask]
> >> >> http://www.zazzle.com/TamarMag*
> >> >> www.cafepress.com/tamarmag 
> >> >> 
> >> >> Retired Commissioner, MCPD
> >> >> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >> >> 
> >> >> 
> >> >> 
> >> >> 
> >> >> ________________________________
> >> >> From: Linda Walker <[log in to unmask]>
> >> >> To: [log in to unmask]
> >> >> Sent: Thursday, September 10, 2009 5:18:23 PM
> >> >> Subject: Re: Controversial Topic...
> >> >> 
> >> >> Kendall,
> >> >> 
> >> >> Exactly. My dau in law survived 3 layoffs at American Express and if 
> >> >> she was laid off Case would have nothing. We've struggled with the PT 
> >> >> caps as well. Where is Ken but there is no other side as far as I am 
> >> >> concerned. It is humane to insure people and next year at 65 I will 
> >> >> be eligible for government insurance. Thank god I am healthy but if I 
> >> >> were to have an accident I would be uninsured. I am not concerned 
> >> >> about it though as I've made it this far. When I need medical care I 
> >> >> pay for it so that's the difference for someone like me who needs 
> >> >> little and others with serious conditions.
> >> >> 
> >> >> At 02:14 PM 9/10/2009, you wrote:
> >> >> >Linda,
> >> >> >
> >> >> >The "arbitrary caps" that were mentioned are something I'm all too
> >> >> >familiar with. My insurance is one of the better plans in Wyoming
> >> >> >(the state employees group insurance), and it places a cap of $2K per
> >> >> >year for outpatient physical therapy. At approximately $150 per
> >> >> >visit, that's a little more than one visit per month (13.333 visits).
> >> >> >With the imbalances in muscle tone that CP can cause, if you have an
> >> >> >accident and injure a knee (which I did in July) or fall and break a
> >> >> >bone (which I did in April), those 13 visits can be used up pretty
> >> >> >quickly.
> >> >> >
> >> >> >My boss from 15 years ago was a quadriplegic from an accident, and had
> >> >> >a $2 Million lifetime cap for all medical care under the state plan.
> >> >> >He maxed it out after a surgery went wrong to place rods to straighten
> >> >> >his back. About two years after that, he died, in part because even
> >> >> >the state's high risk insurance pool wouldn't insure him.
> >> >> >
> >> >> >For two years when I was in high school (1977-1978), I had some
> >> >> >serious medical problems and spent about 6 months in three different
> >> >> >hospitals. I saw the bill from one, and it was over $250,000.00; I'd
> >> >> >be surprised if the other two were less than that, so if I were still
> >> >> >covered by that company, I'd probably be pushing th $2 million cap as
> >> >> >well, if that company had the same thing
> >> >> >
> >> >> >I'm still fighting to get an appropriate wheelchair, too. So, health
> >> >> >care reform is something we should all be concerned about, whether we
> >> >> >have CP, another health condition, or have a family member with a
> >> >> >disability or health condition.
> >> >> >
> >> >> >For those of us with CP, getting insurance that's not part of a large
> >> >> >employer based group is likely not an option, because it is much too
> >> >> >expensive, if an insurance company will even look at you. That's the
> >> >> >pre-existing conditions clause.
> >> >> >
> >> >> >I know you know all this, but it feels good to have someone to discuss
> >> >> >it with. I wish Ken Barber would come back so that we can get the
> >> >> >other side of the argument.
> >> >> >
> >> >> >On Thu, Sep 10, 2009 at 2:37 PM, Linda Walker <[log in to unmask]> wrote:
> >> >> > > Kendall,
> >> >> > >
> >> >> > > Case needs surgery badly again and I am investigating what to do. He cann=
> >> >> >ot
> >> >> > > stand still and falls every couple of steps. I only just found out from m=
> >> >> >y
> >> >> > > son that when he had the PERCS with Nuzzo almost nothing was covered and
> >> >> > > they owe a big bill and cannot consider doing it again without better
> >> >> > > coverage. And here's the kicker - - they have very good insurance compare=
> >> >> >d
> >> >> > > to most Americans. I for instance have never had any except for two of my=
> >> >> > 64
> >> >> > > yrs.
> >> >> > > I am mad as hell at the Republicans and hope the public option remains.
> >> >> > > We are considering SDR with Parks in St Louis and also the muscle ligamen=
> >> >> >t
> >> >> > > transfers the orthopods in Hawaii at Shriners are talking about. I am
> >> >> > > against those because we chelate scar and I think it will be a problem.
> >> >> > > Case was elected Vice President of his school and is enjoying that. He is=
> >> >> > 11
> >> >> > > now and the surgery lasted about 2 and 1/2 years.
> >> >> > > Early this year I traveled out of the country to South America, only to
> >> >> > > countries that are friendly to us and in Argentina, Chile, Ecuador not on=
> >> >> >ly
> >> >> > > do they have free higher education but also better health care than we ha=
> >> >> >ve.
> >> >> > > This is what even poor countries can do for their citizens when they do n=
> >> >> >ot
> >> >> > > spend everything on war. Chile and Argentina are fast becoming first worl=
> >> >> >d
> >> >> > > countries. It also felt incredibly peaceful there compared to here. Of
> >> >> > > course you know I like Obama and Case and I went to meet him before he wa=
> >> >> >s
> >> >> > > elected. I have been disappointed in his Afghan policy and also in his
> >> >> > > trying so hard to bring those Reps along. So I was glad he sounded strong=
> >> >> >er
> >> >> > > and firmer last night.
> >> >> > >
> >> >> > >
> >> >> > > At 12:09 PM 9/10/2009, you wrote:
> >> >> > >>
> >> >> > >> Jessica,
> >> >> > >>
> >> >> > >> I know you joined to learn about CP, but more often than not, we
> >> >> > >> discuss non-disability topics, or topics that are tangentially related
> >> >> > >> to CP and disabilities. =A0With that in mind, what did people think of
> >> >> > >> President Obama's speech last night? =A0I thought it was great, but I
> >> >> > >> have questions about how he'll keep health care reform "budget
> >> >> > >> neutral." =A0Will it mean large tax increases to support the "public
> >> >> > >> option," will it mean cuts to other programs? =A0Does he honestly expect
> >> >> > >> the insurance industry to fall into line without a large fight (if
> >> >> > >> August is an indication, that won't happen!) =A0Those of you who know me
> >> >> > >> know that I'm playing "Devil's advocate" to encourage discussion!
> >> >> > >> --
> >> >> > >>
> >> >> > >>
> >> >> > >> Kendall
> >> >> > >>
> >> >> > >> An unreasonable man (but my wife says that's redundant!)
> >> >> > >>
> >> >> > >> The reasonable man adapts himself to the world; the unreasonable one
> >> >> > >> persists in trying to adapt the world to himself. Therefore, all
> >> >> > >> progress depends on the unreasonable man.
> >> >> > >>
> >> >> > >> -George Bernard Shaw 1856-1950
> >> >> > >>
> >> >> > >> -----------------------
> >> >> > >>
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> >> >> > >>
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> >> >> > >
> >> >> > > -----------------------
> >> >> > >
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> >> >> > >
> >> >> > > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy
> >> >> > >
> >> >> >
> >> >> >
> >> >> >
> >> >> >--=20
> >> >> >
> >> >> >
> >> >> >Kendall
> >> >> >
> >> >> >An unreasonable man (but my wife says that's redundant!)
> >> >> >
> >> >> >The reasonable man adapts himself to the world; the unreasonable one
> >> >> >persists in trying to adapt the world to himself. Therefore, all
> >> >> >progress depends on the unreasonable man.
> >> >> >
> >> >> >-George Bernard Shaw 1856-1950
> >> >> >
> >> >> >-----------------------
> >> >> >
> >> >> >To change your mail settings or leave the C-PALSY list, go here:
> >> >> >
> >> >> >http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy
> >> >> 
> >> >> -----------------------
> >> >> 
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> >> >> 
> >> >> -----------------------
> >> >> 
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> >> >-----------------------
> >> >
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> >> >
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> >> 
> >> -----------------------
> >> 
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