Hello!! 



Thank you for your enthusiastic response to my request for

participants in my study of adults with CP. 



I suspect that some of you did not get the list of criteria

for participation so I am including it again - hopefully with

more success than on my last attempt.



If an individual wishes to participate, it will be his or her

responsibility provide their "snail mail" address in a PRIVATE

e-mail to [log in to unmask]



 Do not send this information to the C-PALSY list.



 I ask this specifically as I am charged with protecting your

confidenntiality and private e-mails from the begining are,I

feel, the best way to do this.



Criteria for participation in this study are as listed below.

An individual must meet all six criteria in order to be

considered for participation in the study.



	An individual must have cerebral palsy



	An individual must be at least 35 years of age. There is no

upper limit on age.



	An individual must be able to travel to the Main Campus of

Temple University on two occasions in order to participate in

two (2) interviews that will take 2 to 2 ½ hours on each

occasion. Alternatively, you may participate in the interviews

by phone, e-mail, IM or some combination thereof.





HOWEVER, Please note that I am reqquired to do about half of

the interviews face-to face according to the terms under which

my proposal was approved.



A third, optional interview may be held if mutaully agreed

apon. If a third interview is held, you will be paid $20.00

for that one as well.



	An individual must be able to respond to open-ended interview

questions using either natural speech or an augmented

communication device. Dysarthric speech patterns will not

automatically disqualify an individual, but individuals with

significant dysarthria will be asked to contact me so that we

can determine appropriate compensatory strategies prior to

commencing interviews. Proxy informants will not be utilized. 

(In other words, someone else will not be able to respond for

you.)



An individual must reside in the community. That is, not in an

institution or a nursing home. 



you must have a stable work or vulunteer role or have retired

from such a role in the last 5 years.



There are specific factors that will preclude an individual’s

participation in this study.



The individual does not have CP.



The individual is not at least 35 years of age.



The individual resides in an institution or a nursing home.



The individula does not have a stable work or volunteer role

or has not retired from such a role.



The individual is not a U.S. citizen. (Sorry!!!).

The resons for this are as follows:

1. The University IRB Committee has approved a national, not

an international, study.

2. Some of the interview questions have to do with the use of

disability-specific services and supports and access to heath

care.



Given that American versuss European and Canadian Social

systems vary gratly as regaurds these issues, including

international repondents would complicate things immessurably.



Howerever, I am happy to do 2 things.



Provide a summary of my findings to members of the C-PALSY List.



Conduct an international stdy (with appropriate funding and

other supports) AFTER I finish my Dissertation.



Hope this clarifies some things,



Bonnie