well since i did not know better i married and started a family. my youngest
son is 15 and now i am looking at "how the hell am i going to keep going
until he is out of school?" i believed that "it wont get worse crapola that
dr. feed us. these docs need to have their butts kicked. i went to see a
pediactric ortho. i wish he'd have believed that my problem was aging with
cp. instead he thinks it has to be a neck injury because "that is all that
could explain the global pain i have" (referral to spine center, another
round of referrals for every body. i could just throw up.} oh yes, there is
a neck injury you fool doctor, but there is also many other injuries too. i
wish i'd had this website to give him. and once it is up and going i'll
still get it to him. i have his email address,  they still spout this wont
be any worse stuff.

-----Original Message-----
From: Magenta Raine [mailto:[log in to unmask]]
Sent: Sunday, June 30, 2002 10:21 PM
To: [log in to unmask]
Subject: Re: New web site idea--back to my original point


Pam,
when my dr first told me at 32 that I'd be in a wheelchair pretty soon, I
laughed at her.  I'd never heard what my dad told me; that my CP doc had
warned them when I was a teenager that this sort of a decline might happen.
FYI, as much as we dislike UCP for various reasons, UCP of the golden gate
helped sponsor  a ten year follow-up up on those of us who were aging with
cp. I think we should all tell our stories on the website, so that folks can
see that at EVERY level of CP, and every type of CP, a decline in ability is
a sure bet unless you really work at restoring your body.

Like most of you, I was a dynamo in college, I worked my butt off for the
anti-nuke & peace movements.
I walked around, drove a car, rode an adult size trike.

Like you, Pam, I realize I just have no stamina to raise a baby or young
kids. And that's very, very sad for us, since we love kids. My advice to
young cp'ers, have kids while you're young!

I just told my job counselor I no longer want to be considered for the
quality of life interview job, and it was hard for her to understand why I
just don't have the energy to do interviews even with a speech device.

Mag
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