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Subject:	Re: Kathy Jo Pink
From:	"Kendall D. Corbett" <[log in to unmask]>
Reply To:	Cerebral Palsy List <[log in to unmask]>
Date:	Wed, 6 Apr 2011 09:38:02 -0600
Content-Type:	text/plain
Parts/Attachments:	text/plain (339 lines)
Kathy Jo,

Sorry I haven't been able to keep up on this.  I was out of town, and then
yesterday was nuts.  What's been said I agree with, and asking for PT, OT,
and speech therapy would be good.  A speech therapist might be able to help
with some of the swallowing/chewing issues, and a dietician might be helpful
for nutritional issues.  In the world of people with acquired disabilities,
insurance will pay for periodic re-wvaluations at a rehsb facility, where
all modalities of therapy are available.  I'm getting ready to push my
insurance company for one, so you might want to check into that.

Kendall

On Wed, Apr 6, 2011 at 9:20 AM, Kathy Pink <[log in to unmask]> wrote:

> that's right.  Should i ask to have speech therapy ? theychopped , blended,
> or purred my food, but, in march they bought and fed me baby food when i was
> on a home visit.
>
>
>
>
>
>
>
>
>
>
>
>
>
> > Date: Mon, 4 Apr 2011 18:23:56 -0700
>  > From: [log in to unmask]
> > Subject: Re: Kathy Jo Pink
> > To: [log in to unmask]
> >
> > Do you mean that you've never had any therapy to see if you can be taught
> how to
> > chew?  How did your parents prepare your food? just trying to get a
> better
> > understanding.
> >
> >
> >
> > Thanks,
> > Tamar
> >
> > ~~~~~~~~
> >      First they came for the communists,
> > and I didn't speak out because I wasn't a communist.
> >      Then they came for the trade unionists,
> > and I didn't speak out because I wasn't a trade unionist.
> >      Then they came for the Jews,
> > and I didn't speak out because I wasn't a Jew.
> >      Then they came for me
> > and there was no one left to speak out for me.
> >         ~~Pastor Martin Niemoller~~
> >
> >
> >
> >
> > ________________________________
> > From: Kathy Pink <[log in to unmask]>
> > To: [log in to unmask]
> > Sent: Mon, April 4, 2011 3:44:56 PM
> > Subject: Re: Kathy Jo Pink
> >
> > Ever since I can remember.  Kathy Jo
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > > Date: Sun, 3 Apr 2011 17:53:18 -0700
> > > From: [log in to unmask]
> > > Subject: Re: Kathy Jo Pink
> > > To: [log in to unmask]
> > >
> > > I have trouble chewing too at times.  Surely there is a way to  puree
> real food
> > >
> > > so you're not just eating baby food.  I really enjoy fruit blended up
> with
> > > yogurt, and vegetable can be cooked  til they are soft enough.  That's
> another
> >
> > > reason i asked for a juicing machine, so I could get enough nutrients
> from
> > >fresh
> > >
> > > carrot juice. one of my favorites is 4 oranges (peeled) one cucumber
> and six
> > > carrots, and sometimes a handful of spinach.  mkes a very healthy 12
> ounce
> > >glass
> > >
> > > of juice.
> > >
> > > Kathy jo, how long have you had trouble chewing?
> > >
> > >
> > > Thanks,
> > > Tamar
> > >
> > > ~~~~~~~~
> > >      First they came for the communists,
> > > and I didn't speak out because I wasn't a communist.
> > >      Then they came for the trade unionists,
> > > and I didn't speak out because I wasn't a trade unionist.
> > >      Then they came for the Jews,
> > > and I didn't speak out because I wasn't a Jew.
> > >      Then they came for me
> > > and there was no one left to speak out for me.
> > >         ~~Pastor Martin Niemoller~~
> > >
> > >
> > >
> > >
> > > ________________________________
> > > From: Kathy Pink <[log in to unmask]>
> > > To: [log in to unmask]
> > > Sent: Sun, April 3, 2011 3:21:53 PM
> > > Subject: Re: Kathy Jo Pink
> > >
> > > I need to eat baby food because I can't chew and for my bowels.  KJ
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > > Date: Sat, 2 Apr 2011 11:43:28 -0700
> > > > From: [log in to unmask]
> > > > Subject: Re: Kathy Jo Pink
> > > > To: [log in to unmask]
> > > >
> > > > Kathy jo, Why has the doctor said you can't bear weight?  Why are you
> needing
> > >
> > > >to
> > > >
> > > > eat baby food? something is defintely wwrong in how they are caring
> for you!
> > >I
> > >
> > > >
> > > > would ask for an OT to evaulate your ability.
> > > >
> > > >
> > > >
> > > > Thanks,
> > > > Tamar
> > > >
> > > > ~~~~~~~~
> > > >      First they came for the communists,
> > > > and I didn't speak out because I wasn't a communist.
> > > >      Then they came for the trade unionists,
> > > > and I didn't speak out because I wasn't a trade unionist.
> > > >      Then they came for the Jews,
> > > > and I didn't speak out because I wasn't a Jew.
> > > >      Then they came for me
> > > > and there was no one left to speak out for me.
> > > >         ~~Pastor Martin Niemoller~~
> > > >
> > > >
> > > >
> > > >
> > > > ________________________________
> > > > From: Kathleen Salkin <[log in to unmask]>
> > > > To: [log in to unmask]
> > > > Sent: Sat, April 2, 2011 11:17:10 AM
> > > > Subject: Re: Kathy Jo Pink
> > > >
> > > > Agreed.  I work out using dumbbells cycler, and a floor mat,  My body
> is in
> > > > much better tune and I am more active now than a year ago.  I am
> wondering,
> > > > Kathy Jo, if there are any physical therapists at your facility - if
> so, can
> > > > you and your doctor set up a fitness program so you can stay in shape
> > > > better?   It does help.
> > > >
> > > > Kat
> > > >
> > > > On Sat, Apr 2, 2011 at 1:32 PM, Anthony Arnold <
> [log in to unmask]>wrote:
> > > >
> > > > > Kathy, I was thinking the same thing. Aren't there any
> > > > > physical/occupational
> > > > > therapy services where you are at currently? I know for a couple of
> years
> > > > > now, I have been going to a personal trainer where I have truly
> benefited
> > > > > from. I have lost a great deal of weight, and it's surprising to
> see how
> > > > > much easier it is for me to transfer and move around.
> > > > >
> > > > > I will keep thinking of you.
> > > > >
> > > > > Thanks,
> > > > > Anthony
> > > > >
> > > > > -----Original Message-----
> > > > > From: Cerebral Palsy List [mailto:[log in to unmask]] On
> Behalf Of
> > > > > Michael H Collis
> > > > > Sent: Saturday, April 02, 2011 12:11 PM
> > > > > To: [log in to unmask]
> > > > > Subject: Re: Kathy Jo Pink
> > > > >
> > > > > Kathy, Doesn't your body tell you when it needs to void?  What
> happened
> > > > > to your ability to bear weight on your feet?  What place are you
> at?
> > > > >
> > > > >
> > > > > -----Original Message-----
> > > > > From: Cerebral Palsy List [mailto:[log in to unmask]] On
> Behalf Of
> > > > > Kathy Pink
> > > > > Sent: Saturday, April 02, 2011 12:19 PM
> > > > > To: [log in to unmask]
> > > > > Subject: Kathy Jo Pink
> > > > >
> > > > > Hello listmates:
> > > > >
> > > > > I need to vent.  I have been in diapers since November.  I,
> suddenly wet
> > > > > and
> > > > > need to be changed every half hour.  (deep cry!) So, yeah, I am
> just like
> > a
> > > > > newborn baby---potty wise.  Where I live, they only like to change
> > people's
> > > > > diapers every two hours.  Everyone that lives here wears diapers.
> > > > >
> > > > > Also, I have lost the ability to bare any weight on my feet.  (due
> to a
> > > > > stupid doctor order!)  So, I need to be carried.  They have started
> last
> > > > > weekend to have two staff on during the day because of this.
> > > > >
> > > > > I, also, started needing to eat baby food.
> > > > >
> > > > > What's next, dear friends?  I'm ttrying my best to keep positive .
> > > > >
> > > > > -----------------------
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-- 


Kendall

An unreasonable man (but my wife says that's redundant!)

The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all progress
depends on the unreasonable man.

-George Bernard Shaw 1856-1950

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