Yes, I am the Speech-to-Speech guy. For more information on telephone
assistance for people with speech disabilities see: www.speechtospeech.org
-----Original Message-----
From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of
Tamar Raine
Sent: Wednesday, July 30, 2008 7:15 PM
To: [log in to unmask]
Subject: Re: Dealing with the public if you have CP
we should get tee shirts that say; "Proud Defective"
ya think if they didn't see us as defective then nbc would televise the
paralympics?
holy moly
bob, are you the same one that works on sts issues?
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
http://www.zazzle.com/TamarMag*
Tamar Mag Raine
[log in to unmask]
www.cafepress.com/tamarmag
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
----- Original Message ----
From: Bob Segalman <[log in to unmask]>
To: [log in to unmask]
Sent: Wednesday, July 30, 2008 5:32:53 PM
Subject: Dealing with the public if you have CP
Kat
Most people who see me on the street view me as defective. They ignore the
name plate on the back of my wheelchair the says:
"Bob Segalman, Ph.D., Sc.D. (Hon.) - the only American with cerebral
palsy known to hold two doctorates"
- Bob
-----Original Message-----
From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of
Kathy
Sent: Wednesday, July 30, 2008 4:56 PM
To: [log in to unmask]
Subject: Re: Genetic Link to CP??
Well, I don't consider myself a "defect," either (or else I'd be sitting
at home doing nothing, like a lump) but unfortunately AB people think we
are. :( Hell, I know plenty of deaf/HOH people who don't want to
identify themselves as disabled because they don't want to be seen as
defective - of course that means they don't wear the hearing aids or
cochlear implant processors that could help them so much.
You really stirred up some hornets with this one! ;)
Kat
Linda Macaulay wrote:
> James,
>
> Read or don't read what I post to the list. Form your own thoughts
> and opinions and express them as you like. I got the email and
> thought it would be worthy of some comment....and apparently I was
> right ;)
>
> For the record, I like who I am and certainly don't think I am
> DEFECTIVE...One of the reasons the article title made me react so
> vehemently "No Way!" However, I was intrigued and read on and perhaps
> there is a grain of salt to a genetic connection that may make
> conditions such that CP COULD occur. Certainly doubt it would ever be
> found to be like Down's Syndrome or other genetic diseases.
>
> Linda
>
> On Jul 30, 2008, at 5:41 PM, James Fee wrote:
>
>> [log in to unmask] wrote:
>>> Hang on, I don't think Linda was calling CP a genetic defect, just
>>> that CP
>>> could be caused by genetic mutations.
>>>
>>
>> I don't think she CALLED it anything, just suggested we read an
>> article about it might be..
>>
>> Jim Fee
>>> Kat
>>>
>>> Original Message:
>>> -----------------
>>> From: James Fee [log in to unmask]
>>> Date: Wed, 30 Jul 2008 17:17:51 -0400
>>> To: [log in to unmask]
>>> Subject: Re: Genetic Link to CP??
>>>
>>>
>>> I really wish people would get this straight, and I don't know why
>>> if urks me SO MUCH that they don't, perhaps its a male virility thing.
>>>
>>> There is a genetic defect that causes a lower of calcium in the
>>> bones, children born with this defect break bones wille-nillie...in
>>> fact some parents have been accused on child abuse because of it.
>>> But the broken bones ARE NOT a genetic defect the lower calcium is.
>>>
>>> ITS THE SAME WITH CP, DAMN IT. CP (simplified to the ridiculous) is
>>> broken nerve fibers. SOMTIMES those broken nerve fibers ARE CAUSED
>>> by a genetic defect in the Mom, BUT CP IS NOT a genetic defect.
>>>
>>> Okay, I'll go back to my corner now.
>>> Jim Fee
>>>
>>> Linda Macaulay wrote:
>>>
>>>> Here's something I found on BabyCenter -- take a look!
>>>>
>>>> Australian study seeks genetic roots of cerebral palsy
>>>>
>>>>
>>>>
>>>
http://www.babycenter.com/204_australian-study-seeks-genetic-roots-of-cerebr
>>>
>>> al-palsy_5234805.bc
>>>> (If clicking doesn't work, simply cut and paste the link into your
>>>> Web browser.)
>>>>
>>>>
>>>> When I first saw the title, I thought "No way!", but then in
>>>> reading it, maybe...
>>>>
>>>> Heck, my mom and I both have Factor V Leiden which is a genetic
>>>> mutation to be more prone to blood clots. When we learned I had it
>>>> and then mom too, we realized that was probably why she had so many
>>>> miscarriages and that I came early...placenta bloodclotting...thus
>>>> why I must take injections of blood thinner when pregnant and be
>>>> monitored closely...
>>>>
>>>> Any thoughts?
>>>>
>>>> Linda
>>>>
>>>>
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