Joy, I have no idea what this thing is..   I am on the major adcocacy
lists (JFA, and ADAPT) but without something like a thread to follow,
you have me flumoxed, which isn't hard to do...   :-D   .

- Joy - wrote:

>I agree with your stance on the issue, but this letter is very poorly
>worded.  First of all, not everyone who feels passionately about these
>issues is "the caregiver to a child with cerebral palsy".  People with
>disabilities (and other non-disabled friends and family) would also be
>willing to take action on this, but this letter excludes them.  It also
>disempowers people with disabilities from advocating on their own behalf.
>Also, I resent the implication that the cap would "make us victims twice".
>I don't consider myself a victim, and by sending this letter to legislators,
>the organization is perpetuating a stereotype that is pervasive and
>inaccurate.  While I recognize that action alerts are often drafted quickly
>to accommodate the time-sensitive nature of the issue, I encourage you to
>reconsider the wording used here.
>
>Joy Welan
>
>
>