I have a Baclofen pump, and it does help reduce my spasticity. I'm more
comfortable than I was before I got the pump. Before I had the surgery to
insert the pump, I was given a dose of Baclofen in my spinal fluid. I think
that is usually done. It helped me make the decision to get the pump.
I think it's wise to ask people about their experiences with the pump,
doctors don't have first hand experience with the pump.
Pam
On Tue, Oct 29, 2013 at 9:01 PM, C-PALSY automatic digest system <
[log in to unmask]> wrote:
> There are 7 messages totaling 445 lines in this issue.
>
> Topics of the day:
>
> 1. Bacofen (7)
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
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>
> ----------------------------------------------------------------------
>
> Date: Tue, 29 Oct 2013 06:22:02 -0400
> From: Kathleen Salkin <[log in to unmask]>
> Subject: Re: Bacofen
>
> I'm sure they use it for other conditions that create spastic muscles. CP
> is not the only condition that creates spasticity.
>
> Kat
>
>
> On Mon, Oct 28, 2013 at 7:22 PM, Kathy Jo Pink <[log in to unmask]
> >wrote:
>
> > Does anybody know if Bacofen is a CP thing?
> > -----------------------
> >
> > To change your mail settings or leave the C-PALSY list, go here:
> >
> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
> >
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
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>
> ------------------------------
>
> Date: Tue, 29 Oct 2013 07:31:56 -0500
> From: Kathy Jo Pink <[log in to unmask]>
> Subject: Re: Bacofen
>
> Is this a fairly new thing? Thanks!
>
>
>
>
>
>
>
>
>
>
>
> > Date: Mon, 28 Oct 2013 18:22:34 -0500
> > From: [log in to unmask]
> > Subject: Bacofen
> > To: [log in to unmask]
> >
> > Does anybody know if Bacofen is a CP thing?
> > -----------------------
> >
> > To change your mail settings or leave the C-PALSY list, go here:
> >
> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
> ------------------------------
>
> Date: Tue, 29 Oct 2013 09:05:47 -0400
> From: greta von der luft <[log in to unmask]>
> Subject: Re: Bacofen
>
> Here is a wonderful site that gives credible systematic reviews for
> different interventions: http://www.aacpdm.org/publications/outcome . As a
> disclosure, I am a member of this association.
> Take care,
> Greta
>
>
> On Tue, Oct 29, 2013 at 8:31 AM, Kathy Jo Pink <[log in to unmask]
> >wrote:
>
> > Is this a fairly new thing? Thanks! =20
> > =20
> > =20
> > =20
> > =20
> > =20
> > =20
> > =20
> > =20
> > =20
> >
> > =20
> > > Date: Mon=2C 28 Oct 2013 18:22:34 -0500
> > > From: [log in to unmask]
> > > Subject: Bacofen
> > > To: [log in to unmask]
> > >=20
> > > Does anybody know if Bacofen is a CP thing?
> > =20
> > > -----------------------
> > >=20
> > > To change your mail settings or leave the C-PALSY list=2C go here:
> > >=20
> > > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy
> > =
> >
> > -----------------------
> >
> > To change your mail settings or leave the C-PALSY list, go here:
> >
> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy
> >
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
> ------------------------------
>
> Date: Tue, 29 Oct 2013 09:11:10 -0400
> From: Kathleen Salkin <[log in to unmask]>
> Subject: Re: Bacofen
>
> No, it's been around for at least 10 years.
>
> Kat
>
>
> On Tue, Oct 29, 2013 at 8:31 AM, Kathy Jo Pink <[log in to unmask]
> >wrote:
>
> > Is this a fairly new thing? Thanks!
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > > Date: Mon, 28 Oct 2013 18:22:34 -0500
> > > From: [log in to unmask]
> > > Subject: Bacofen
> > > To: [log in to unmask]
> > >
> > > Does anybody know if Bacofen is a CP thing?
> > > -----------------------
> > >
> > > To change your mail settings or leave the C-PALSY list, go here:
> > >
> > > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
> >
> > -----------------------
> >
> > To change your mail settings or leave the C-PALSY list, go here:
> >
> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
> >
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
> ------------------------------
>
> Date: Tue, 29 Oct 2013 10:00:24 -0600
> From: Kendall Corbett <[log in to unmask]>
> Subject: Re: Bacofen
>
> It's a good general anti-spasticity drug. It's used for people with MS,
> CP, spinal cord injuries, stroke and other neurological disabilities that
> cause spasticity. It's been around since at least 1983. A friend was in a
> car accident in 1983, and baclofen (lioresal) was the first drug that he
> got for his spasms. It was fairly new then, because it hadn't become
> available as a generic.
>
> On Tuesday, October 29, 2013, Kathleen Salkin wrote:
>
> > No, it's been around for at least 10 years.
> >
> > Kat
> >
> >
> > On Tue, Oct 29, 2013 at 8:31 AM, Kathy Jo Pink <
> [log in to unmask]<javascript:;>
> > >wrote:
> >
> > > Is this a fairly new thing? Thanks!
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > > Date: Mon, 28 Oct 2013 18:22:34 -0500
> > > > From: [log in to unmask] <javascript:;>
> > > > Subject: Bacofen
> > > > To: [log in to unmask] <javascript:;>
> > > >
> > > > Does anybody know if Bacofen is a CP thing?
> > > > -----------------------
> > > >
> > > > To change your mail settings or leave the C-PALSY list, go here:
> > > >
> > > > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
> > >
> > > -----------------------
> > >
> > > To change your mail settings or leave the C-PALSY list, go here:
> > >
> > > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
> > >
> >
> > -----------------------
> >
> > To change your mail settings or leave the C-PALSY list, go here:
> >
> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
> >
>
>
> --
>
>
> Kendall
>
> An unreasonable man (but my wife says that's redundant!)
>
> The reasonable man adapts himself to the world; the unreasonable one
> persists in trying to adapt the world to himself. Therefore, all progress
> depends on the unreasonable man.
>
> -George Bernard Shaw 1856-1950
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
> ------------------------------
>
> Date: Tue, 29 Oct 2013 10:12:25 -0600
> From: Kendall Corbett <[log in to unmask]>
> Subject: Re: Bacofen
>
> Baclofen pumps (intrathecal baclofen) deliver the drug directly into the
> spinal fluid, which also circulates through the brain. Pumps have been
> around for at least 20 years, because the surgeon that put mine in last
> year was doing research on them in his residency and fellowship training
> (1992 - 2003). Janet got her first pump in 2006, and had it replaced last
> year. The predicted life of the pump is 5 years.
>
> On Tuesday, October 29, 2013, Kendall Corbett wrote:
>
> > It's a good general anti-spasticity drug. It's used for people with MS,
> > CP, spinal cord injuries, stroke and other neurological disabilities that
> > cause spasticity. It's been around since at least 1983. A friend was
> in a
> > car accident in 1983, and baclofen (lioresal) was the first drug that he
> > got for his spasms. It was fairly new then, because it hadn't become
> > available as a generic.
> >
> > On Tuesday, October 29, 2013, Kathleen Salkin wrote:
> >
> >> No, it's been around for at least 10 years.
> >>
> >> Kat
> >>
> >>
> >> On Tue, Oct 29, 2013 at 8:31 AM, Kathy Jo Pink <
> [log in to unmask]
> >> >wrote:
> >>
> >> > Is this a fairly new thing? Thanks!
> >> >
> >> >
> >> >
> >> >
> >> >
> >> >
> >> >
> >> >
> >> >
> >> >
> >> >
> >> > > Date: Mon, 28 Oct 2013 18:22:34 -0500
> >> > > From: [log in to unmask]
> >> > > Subject: Bacofen
> >> > > To: [log in to unmask]
> >> > >
> >> > > Does anybody know if Bacofen is a CP thing?
> >> > > -----------------------
> >> > >
> >> > > To change your mail settings or leave the C-PALSY list, go here:
> >> > >
> >> > > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
> >> >
> >> > -----------------------
> >> >
> >> > To change your mail settings or leave the C-PALSY list, go here:
> >> >
> >> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
> >> >
> >>
> >> -----------------------
> >>
> >> To change your mail settings or leave the C-PALSY list, go here:
> >>
> >> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
> >>
> >
> >
> > --
> >
> >
> > Kendall
> >
> > An unreasonable man (but my wife says that's redundant!)
> >
> > The reasonable man adapts himself to the world; the unreasonable one
> > persists in trying to adapt the world to himself. Therefore, all progress
> > depends on the unreasonable man.
> >
> > -George Bernard Shaw 1856-1950
> >
>
>
> --
>
>
> Kendall
>
> An unreasonable man (but my wife says that's redundant!)
>
> The reasonable man adapts himself to the world; the unreasonable one
> persists in trying to adapt the world to himself. Therefore, all progress
> depends on the unreasonable man.
>
> -George Bernard Shaw 1856-1950
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
> ------------------------------
>
> Date: Tue, 29 Oct 2013 12:24:45 -0400
> From: Kathleen Salkin <[log in to unmask]>
> Subject: Re: Bacofen
>
> The best person to discuss all this, Kathy Jo, is with your doctor. Each
> case is different and he or she knows best how well it'd work, and if it's
> the best option for you.
>
> In my case, my neurologist and my orthopaedist both told me am not spastic
> enough for the pump. So it's not an option for me. Also, the type of
> spasticity is a factor in the success of the treatment.
>
> Kat
>
>
> On Tue, Oct 29, 2013 at 9:05 AM, greta von der luft <[log in to unmask]
> >wrote:
>
> > Here is a wonderful site that gives credible systematic reviews for
> > different interventions: http://www.aacpdm.org/publications/outcome .
> As a
> > disclosure, I am a member of this association.
> > Take care,
> > Greta
> >
> >
> > On Tue, Oct 29, 2013 at 8:31 AM, Kathy Jo Pink <
> [log in to unmask]
> > >wrote:
> >
> > > Is this a fairly new thing? Thanks! =20
> > > =20
> > > =20
> > > =20
> > > =20
> > > =20
> > > =20
> > > =20
> > > =20
> > > =20
> > >
> > > =20
> > > > Date: Mon=2C 28 Oct 2013 18:22:34 -0500
> > > > From: [log in to unmask]
> > > > Subject: Bacofen
> > > > To: [log in to unmask]
> > > >=20
> > > > Does anybody know if Bacofen is a CP thing?
> > > =20
> > > > -----------------------
> > > >=20
> > > > To change your mail settings or leave the C-PALSY list=2C go here:
> > > >=20
> > > > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy
> > > =
> > >
> > > -----------------------
> > >
> > > To change your mail settings or leave the C-PALSY list, go here:
> > >
> > > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy
> > >
> >
> > -----------------------
> >
> > To change your mail settings or leave the C-PALSY list, go here:
> >
> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
> >
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
> ------------------------------
>
> End of C-PALSY Digest - 28 Oct 2013 to 29 Oct 2013 (#2013-53)
> *************************************************************
>
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