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Subject:
From:
Kathy Jo Pink <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 17 May 2005 19:58:54 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (251 lines)
You can find out about REM at
http://www.cesa5.k12.wi.us/speced/poem/rem.html.









Tamar Raine wrote:

>Kathy Jo, maybe you need to get a new case manager?  what is REM?
>
>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>Please ask your Congressperson to vote FOR the MICASSA bill, this
>will allow medicaid funds to pay for community supports
>instead of isolating the person in a nursing home or institution.
>HR 910 is the bill number
>Senate version of MiCASSA (S 401).
>
>Oakland Mayor's Commission on People with disabilities
>~Tamar Mag Raine~
>[log in to unmask]
>IM: tamarmag48
>Yahoo IM Tamarmag56
>
>
>
>
>>[Original Message]
>>From: Kathy Jo Pink <[log in to unmask]>
>>To: <[log in to unmask]>
>>Date: 5/10/2005 1:39:48 PM
>>Subject: Re: new member intro and some well-meant comments...
>>
>>Mag,
>>
>>
>>
>>it was NOT an Independent Living Center.  It was R.E.M.  I get my
>>funding from my county.  The county is saying no, we can't afford
>>R.E.M.  R.E.M. was perfect!  I met with my Independent Living Center
>>last fall and I have my social Worker from the county that I live in and
>>the Independent Living Center Specialist said she should be helping me
>>and she isn't.  (Besides Cornerstone.)
>>
>>
>>
>>Kathy
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>Tamar Raine wrote:
>>
>>
>>
>>>Independent Living centers usually   are funded by the Federal
>>>
>>>
>government,
>
>
>>>so, I don't understand what you mean by it being too expensive.
>>>
>>>Mag
>>>
>>>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>>>Please ask your Congressperson to vote FOR the MICASSA bill, this
>>>will allow medicaid funds to pay for community supports
>>>instead of isolating the person in a nursing home or institution.
>>>HR 910 is the bill number
>>>Senate version of MiCASSA (S 401).
>>>
>>>Oakland Mayor's Commission on People with disabilities
>>>~Tamar Mag Raine~
>>>[log in to unmask]
>>>IM: tamarmag48
>>>Yahoo IM Tamarmag56
>>>
>>>
>>>
>>>
>>>
>>>
>>>>[Original Message]
>>>>From: Kendall David Corbett <[log in to unmask]>
>>>>To: <[log in to unmask]>
>>>>Date: 5/9/2005 11:00:43 AM
>>>>Subject: Re: new member intro and some well-meant comments...
>>>>
>>>>Kathy Jo,
>>>>
>>>>As Ken and Bobby said, CP isn't something you "get over."  Your
>>>>statement reminded me of some "well meaning 'friends'" of my mom when I
>>>>was in school.  They were positive that if my/her faith were strong
>>>>enough, that I could be "normal."  I've got two major problems with
>>>>that.
>>>>
>>>>1.      I think I was and am pretty much normal, even if I do use a
>>>>wheelchair.  I did "normal" things other kids did, although maybe a
>>>>little differently;
>>>>2.      G_d probably had (and has) other things in mind for me than
>>>>testing my faith (or my mom's faith, for that matter) with my
>>>>disability.  I'm not sure what those things are, but I think if I do the
>>>>best I can with what I've got, G_d will be OK with that.  =20
>>>>
>>>>As far as "getting over CP," I think we learn better ways to cope with
>>>>the challenges that we encounter, whether they be physical obstacles, or
>>>>the attitudes of others.  I've learned to just ignore people like my
>>>>mom's former "friends," because it's just not worth the effort to try
>>>>and educate some people.  I spend a _lot_ of time personally and
>>>>professionally working with little kids on disability awareness
>>>>activities, because they seem to be the most receptive.  That doesn't
>>>>mean I ignore older kids and adults, but I give them about three chances
>>>>and move on. =20
>>>>
>>>>You said the first IL center you checked out was "too expensive."  Get
>>>>in touch with the folks at the Waismann Center, and find out if they
>>>>have someone who can help you to develop a plan to achieve the level of
>>>>independence you'd like.  Here's contact info.
>>>>
>>>>Waisman Center=20
>>>>University of Wisconsin-Madison=20
>>>>1500 Highland Ave=20
>>>>Madison, WI 53705-2280=20
>>>>Main Phone:  608-263-1656=20
>>>>Main Fax:  608-263-0529=20
>>>>Website:  http://www.waisman.wisc.edu/=20
>>>>
>>>>Carl Durocher can get you in touch with the right folks at Waismann,
>>>>
>>>>Carl Durocher
>>>>608-265-2544
>>>>[log in to unmask]
>>>>
>>>>and Linda Rowley can give you other contacts throughout Wisconsin
>>>>
>>>>Linda Rowley, LPN, BS
>>>>608-263-5973
>>>>[log in to unmask]
>>>>
>>>>=20
>>>>       =20
>>>>=20
>>>>
>>>>Kendall Corbett
>>>>
>>>>An unreasonable man (but my wife says that's redundant!)
>>>>
>>>>The reasonable man adapts himself to the world; the unreasonable one
>>>>persists in trying to adapt the world to himself. Therefore, all
>>>>progress depends on the unreasonable man.
>>>>-George Bernard Shaw 1856-1950
>>>>
>>>>-----Original Message-----
>>>>From: Bobby Greer [mailto:[log in to unmask]]=20
>>>>Sent: Sunday, May 08, 2005 3:44 PM
>>>>To: [log in to unmask]
>>>>Subject: Re: new member intro and some well-meant comments...
>>>>
>>>>Kathy Jo,
>>>>
>>>>   Acceptance is action and action is an ongoing process.
>>>>For example, if you let others "decide for you", that is not action it's
>>>>giving up. Action is looking into where you might want to stay and
>>>>making a
>>>>decision. You speak of "accepting CP" as if it were an event, but it is
>>>>not,
>>>>it is a lifetime process.
>>>>
>>>>Bobby
>>>>----- Original Message -----
>>>>From: "ken barber" <[log in to unmask]>
>>>>Newsgroups: bit.listserv.c-palsy
>>>>To: <[log in to unmask]>
>>>>Sent: Sunday, May 08, 2005 5:02 PM
>>>>Subject: Re: new member intro and some well-meant comments...
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>> i said "is it true?" have you gotten over cp? maybe
>>>>>you should pay attention to some of the email you get.
>>>>>
>>>>>  you do not just out grow cp. its not an allergy.
>>>>>
>>>>>--- Kathy Jo Pink <[log in to unmask]> wrote:
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>>Huh?
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>ken barber wrote:
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>>well, has it been true?
>>>>>>>
>>>>>>>--- Kathy Jo Pink <[log in to unmask]> wrote:
>>>>>>>
>>>>>>>From
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>>>the time I was age
>>>>>>>>ten to age twenty-nine, everyday I was told that I
>>>>>>>>would walk and get
>>>>>>>>over C.P. later in my life...
>>>>>>>>
>>>>>>>>Kathy Jo Pink
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>__________________________________________________
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>>>>>
>>>>>
>>>
>>>
>>>
>>>
>
>
>
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