Welcome
You might also like to join the CPPARENT list for parents of children with
cerebral palsy. This is also a St Johns list. To subscribe

Send an e-mail to [log in to unmask]  The subject does not
matter.  In the body, put:

subscribe cpparent firstname lastname

Both groups are very informative but cpparent has more parents than adults
with CP.

Regards Elizabeth - Mum to Sarah 6 athetoid CP and Rachel 3.

----- Original Message -----
From: "Julie & David" <Julie&[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, October 05, 2001 8:27 AM
Subject: New member Intro


> Hello everyone!
>    My name is David Brandon and I'm a dad to Gareth, who had major =
> surgery in May 1997, at the Royal Hospital for Sick Children in =
> Edinburgh, Scotland (UK) to remove a very large and equally rare brain =
> tumour. The tumour, although benign, has left Gareth with some problems, =
> including a right sided hemiplegia.
>    My wife and I are currently trying to find out if there is a =
> connection between the hemiplegia and Cerebral Palsy, of which Gareth =
> does show symptoms of having, but this is probably understandable, =
> considering how long the tumour was in his head before he had surgery.  =
> Gareth also has a cysto-peritoneal shunt fitted in his head, which =
> drains the excess CSF fluid.
>    Gareth attends a main stream primary school, but has a full time =
> auxiliary while in class. He needs her for help when climbing up and =
> down steps etc, toileting needs and generally to keep him safe.
>    Basically, we are looking for any additional information that can =
> help us and of course Gareth.   I hope that someone may be able to help =
> us and I look forward to hearing from you. Thanks again!
>
> David Brandon, F/O Gareth 5yo, dx Infantile Desmoplastic Ganglioglioma =
> May 1997. 'Total' resection surgery
> at this time. Has right sided hemiplegia and developmental delay. Next =
> MRI due 31 Oct 2001 - fingers crossed!
> Please visit Gareth's web site for more information. The URL is =
> http://www.geocities.com/davb2141   Thank you!
>