Chester Worwa
A solid AFO I'd think would me hard to walk with.
Chester Worwa
--- On Fri, 7/24/09, JOHN RUNER <[log in to unmask]> wrote:
> From: JOHN RUNER <[log in to unmask]>
> Subject: Re: Upadate on Mary Runer
> To: [log in to unmask]
> Date: Friday, July 24, 2009, 1:47 PM
> no it does not bend it is a solid
> one
>
>
> Thanks
> John Runer
>
> > Date: Fri, 24 Jul 2009 12:41:48 -0700
> > From: [log in to unmask]
> > Subject: Re: Upadate on Mary Runer
> > To: [log in to unmask]
> >
> > Chester Worwa
> >
> > --- On Fr
> > Just wondering. Does Mary's AFO bend?
> >
> >
> > Chester Worwa
> >
> > --- On Fri, 7/24/09, JOHN RUNER <[log in to unmask]>
> wrote:
> >
> > > From: JOHN RUNER <[log in to unmask]>
> > > Subject: Upadate on Mary Runer
> > > To: [log in to unmask]
> > > Date: Friday, July 24, 2009, 5:57 AM
> > > Hello,
> > >
> > >
> > >
> > > My daughter Mary 9 has recently been confirmed by
> sleep
> > > deprived EEG to have
> > > Epilepsy on top of her CP..it is due to
> > > excessive activity in her left hemisphere and
> seems to be
> > > triggered by
> > > fatigue. The neurologist is not medicating
> her yet as
> > > she has only had
> > > one confirmed seizure ( he is having us call if
> we even
> > > suspect another seizure
> > > and will start her on meds at that time, he is
> also having
> > > her come in every
> > > couple of months for
> tracking). Mary also
> > > had a second pulmonary
> > > function test and it confirmed a twenty percent
> reduction
> > > in lung volume
> > > capacity compared to her height and weight.
> Her
> > > pulmonologist said to
> > > keep her away from the larger cities as much as
> possible as
> > > she is very
> > > sensitive to air pollution and we live at high
> elevation
> > > above the smog. At
> > > this point Mary does not require oxygen but she
> did until
> > > around two and a
> > > half. Mary has her right ankle afo and
> actually loves
> > > it! She is
> > > not tripping her self now. We
> also
> > > recently started a special needs
> > > trust for her. I sat and cried about the
> epilepsy as
> > > I used to have grand
> > > mal seizures and still shake on occasion. I
> took
> > > Phenobarbital and it was
> > > terrible, apparently if she starts meds now they
> are much
> > > better.
> > >
> > >
> > >
> > > Thanks,
> > >
> > >
> > >
> > > John Runer dad to Mary RH, cognitive delays,
> Epilepsy
> > >
> > >
> > >
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