Like I said, I'm really sorry for my harsh words and am glad you are
being so kind about all this. I do know there's a proposed link
between CMV and premature births but I didn't think it was borne out
by research. Washing your hands after every trip to the bathroom and
before you touch utensils, etc., is always a good idea, which is so
tragically evident in your case. Unfortunately it's taken the swine
flu scare to make people (and medical staff) be reminded about proper
hygiene.
I guess you pushed a hot button with the "Thin" bit because I have
such strong feelings about people accepting the way they are, not
trying to look like a famous actress (on a even sillier note, there's
a woman in the UK who has shelled out more than 200,000 pounds to look
like Nefertiti -yes, THAT Nefertiti even though she's only going by a
model of a 2000-year-dead woman!).
Kat
On Sat, Aug 22, 2009 at 6:06 AM, <[log in to unmask]> wrote:
> Thank you for your thoughtful comments about my "Thin and Famous" blog as I
> figure out my next move in trying to get a prevention message out there. I
> have written several articles (although I had never heard of the site you
> mentioned so I will submit one to that) and spoken about CMV prevention,
> but in the end, the public doesn't want to hear too much about disability
> and disease, but they do seem attracted to "how to" information, so that is
> why I am trying this approach and chose a silly title. I do want to clarify
> that cytomegalovirus (CMV) did cause my daughter's cerebral palsy (and
> blindness, hearing loss, seizures, mental impairment and death) and it might
> have been prevented had I known during my pregnancy not to share utensils
> with my toddler or kiss her the mouth (or I could have gotten it because I
> ran daycare in my home and perhaps I didn't wash my hands immediately after
> picking up toys the little ones had put in their mouths). I did enjoy all of
> Elizabeth's 16 years, and I believe she enjoyed them with us, but it pains
> me every time I get an e-mail from a mom who just gave birth to a severely
> disabled child and asks, "Why didn't anyone ever warn me about this?"
> Overall, congenital CMV causes more disabilities than Down syndrome, but
> many OB/GYNs don't warn their patients about it. I hope to make it as
> well-known as not changing the kitty litter. You can learn more about congenital
> CMV at: _http://www.cdc.gov/cmv/_ (http://www.cdc.gov/cmv/)
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