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Subject:
From:
Dave & Tammy Canfield <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Mon, 20 Mar 2000 07:27:58 -0800
Content-Type:
text/plain
Parts/Attachments:
text/plain (83 lines)
I appreciate everything you all are saying and suggesting. All 6 kids are
our biological kids.
They have tried to say  that it is detrimental to them to talk about them
 the way we do. That these kids shouldn't know about their disabilty at all
 nor know the reason they are on meds. Give me a break we want them to be
 aware so they know better how to handle things as adults and be able to
life
 life to its fullest.

 Here is a full list of what they said when they came out.
1. The house  was so dirty it is a heath hazard...... Well lets see we have
 a heath nurse who comes out every couple of weeks and has said the house is
 just fine. Especially considering we have 8 people in a 3 brdm apt.   Not
 only that when she came out I was at the Dr since I had been sick for over
a
 week and found out I have pneumonia . Dave was here by himself with 3
little
 ones that are 2 1/2 and 4 year old twins . Who's house would be spotless
with that.

 2. Says that our kids have poor personal hygene. They never bathe .... Our
 kids bathe everyday or every other depending on age. Our oldest is 12
 youngest is 2 1/2.   They say they wear dirty clothes to school oh ya right
that is why I do a ton of laundry every day. They don't even wear the pants
 more then 1 day.  Also say that we don't let the kids get up till 10 min.
 before they have to leave for the bus. Our kids with sleep disorder are
almost always awake and trying to get up by 5AM every day.

 3. They say that we let the kids run around loose all the time and never
 supervise them at all. Not only do we watch them but they have to check in
 every 1/2 hour. That is when do do let them out. They aren't allowed out
 that much because of the area we live in. They do go to the community
center
 every day that it is open and then have to come home as soon as it is over.

 4 That we spend to much time on the internet and the kids go unsupervised
 alot and that we expect the older kids to watch the little ones all the
 time...  This is not true I mean the comp is in the living room . Only have
 1 so that leaves the other one to watch kids. Not only that we have a small
 living room so we sit on the chair alot of times and watch TV not even on
 the comp. We do leave it on line because we have a cable modem and it is
 easier on the comp itself not to be turned on and off.

 5. Of couse the part about being on support groups and our web pages for
the
 kids. Like you basically said you would go nuts with out the support from
 the groups.  We hardly ever get to go out because of not having a car and
 with 6 kids it is almost impossible. This is one of our links to the real
 world and about the new things out there to help our kids...

6. They are trying to say that our kids don't get enough to eat that they go
bedding for food. We have 1 daughter that has been dx as having  an eating
disorder and she will eat 24/7 if we let her. We even have to lock the
fridge at night to keep her under control that way. We have told a few
people to please not feed her and that her body is just this way. The
problem is that she is very skinny as are all our kids. With the ADHD they
have a fast metabolism and burn food fast.
To give you an idea of how much we have to cook. For 8 of us  if we have mac
and cheese  I have to fix 4 boxes of it add 2 cans of corn 2 cans of tuna
fish and lots of real cheese.   There is none left over when they are done.
For eggs and toast they have 2 piecies of toast and with the 8 of us we have
to fix right around 30 eggs and it doesn't matter if they are scrambled,
omlettts , or just reg eggs.

 I am going to send you the link to our page and want to get your feelings
 for it  is in bad taste or what
 http://members.home.com/dtcanfield/index1.html
 you can get to the kids pages through the links at the bottom of the page.

To help remind you of the kids and all even though I normally don't add this
on our e-mails.
Branden 12,  ADD, ODD, encopresis, and sleep disorder
Jessika 10 1/2 , ADHD, ODD, chid onset bipolar, eating disorder, dysgraphia,
LD, and sleep disorder
Daniel 8 1/2,  ADHD, ODD, OCD, verly mild LD, and sleep disorder,
Koltin 4, CP mild quad hypotonic, speech delays
Amanda 4, just found out she has CP,  un dx ADHD, speech delays
Rebekah 2 1/2, CP mild quad mixed, mild speech delays


 Sorry this is so long but wanted you to hear the full story
 Tamara

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