It's definitely hard to get good medical care under any circumstances! I
have turned down more treatments than I have accepted and even with that I
said yes to some I later found out were better to have said no too.
One thing we did to my grandson that I regret is acupuncture. It helped me
with allergies and this acupuncturist said he could regenerate the brain
tissue but it was not so.
I am learning some great things from you guys and am very appreciative.
Also his former PT said the arm swinging was just habit and he could break
it but then I read one complication of botox could be spasticity or
involuntary movement in other parts of the body and he does seem to have
more arm  and shoulder swinging after botox. He's doing just great though
and so are all of you.
It's a learning process and thanks for being so generous with your time.


At 05:40 PM 6/18/2005, you wrote:
>  there are board certified neurologist that do not
>understand cp. it takes an act of congress sometimes
>to get a routine condition diagnosed becouse these
>jerks are just satisfied to say that any pain you have
>is coused by cp. it took me going to 3 doctors to get
>a condition diagnosed that could be diagnosed with one
>xray.
>
>--- [log in to unmask] wrote:
>
> > In a message dated 6/16/2005 8:15:13 PM Pacific
> > Daylight Time,
> > [log in to unmask] writes:
> >
> >
> > > It seems
> > > several people  here understand about the looking
> > down but in tons of
> > > therapy and discussing falling when running no one
> > ever mentioned this.
> > > Strange!
> >
> > Therapists and other medical types don't understand
> > CP!  Don't rely on them.
> >
> > Also, do look into Feldenkrais as someone else
> > mentioned (isn't the eye thing
> > a
> > Feldenkrais idea?)
> >
> > Biofeedback is good too.
> >
> > I  disagree on the idea of him already knowing what
> > he can't do.  How will he
> > ever
> > know if he doesn't try?  It's easy to make excuses
> > (I do it too)
> >
>
>
>
>
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