Hi-

I guess it really bothers me when doctors and/or nurses don't know what
Cerebral Palsy is.  What's Fredrikas?


Kathy











----- Original Message -----
From: Anee Stanford <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, September 17, 1999 10:22 AM
Subject: Re: Time for introducction


> Hi-
>
> I just wanted to sate my agreement with Kyle.  Last year I went to an
OB/GYN
> and you know how the nurse dose your blood pressure and stuff before you
see
> the doc, and takes your history.  Well she asked about existing medical
> conditions and I told her that I have cerebral palsy.  She actually said
> "what's that?", she had no idea what CP was so I explained to her.  I was
a
> little shocked...especialy since she was a crear nurse and had worked in
the
> profession for about 15 to 20 years.  And it's not like CP just disappers
> when you become a teen or adult or something...which is what I think that
> some in the healthcare world think.
>
> And you don't know how many doctors that I have been to and I try to talk
to
> them about CP.  Orthos, Nuros--you know the ones who are spose to be
> experts...I have never met one that knew more about CP then I did...and I
> have never met one that can discuss basic things about CP beyhond what
they
> discuss with parents...especially as I have gotten older.  I start talking
> and I am over there heads as far as CP goes in about 1.5 minutes.  I start
> talking and it's like I am having to educate them on all the intriceses of
> CP, which dosn't really help me.  Now they know the basics...like what is
> CP...and most know about the surgries and the drugs for spastic CP...but
you
> get much byond that and even the "speciallist" --in my experiecne--can't
> answer some questions.  Most of them have never heard of Fredrikas
method--at
> least the last time I asked 2 years ago.  I have come to think that there
are
> no such "experts" when it comes to CP because CP is so varied--at least I
> have not met one in the medical profession.  So be careful when you call
some
> one an expert.  You may be putting them on to high a pedastool. Just
because
> the doctor says something dosn't mean you need/have to do it.
>
> Anee
>
> In a message dated 9/17/1999 7:57:35 AM Central Daylight Time,
> [log in to unmask] writes:
>
> << I really wonder about the people who entrust their kids' (or their own,
for
>  that matter) well-being to physicians without question.  Doc doesn't
always
>  know best.
>
>  Sounds like you're very proactive with Alex's care.  That's great!
You'll
>  find this list a great place for info and support.
>   >>
>