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Subject:
From:
Chester Worwa <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Mon, 30 Apr 2001 10:35:37 -0700
Content-Type:
text/plain
Parts/Attachments:
text/plain (79 lines)
I hope she's not seriously sick, or is this just
another Texas trip?

--- "Cleveland, Kyle E." <[log in to unmask]>
wrote:
> Kathy,
>
> I've been off-list for a week (Laura's been in the
> hospital), so I don't
> know if Ken responded or not, but I think he's doing
> z-flex too (right,
> Ken?).  Did you get the "starter kit" with the blue
> nylon bag and all the
> patient info?  There are good data in it about
> indications and dosing.
>
> I seemed to do a lot better with reduced spasticity
> the first time I took
> the stuff.  I'm just tired of the meds gorking me
> out all the time.  It puts
> pressure on the family life when the kids wanna go
> play and it's all you can
> do to keep your eyes open.  Seems like it's either
> that, or flop around on
> the ground all the time from the spasms.  Can't beat
> it for a sleep aid,
> though, eh?
>
> -Kyle
> -----Original Message-----
> From: K. Salkin [mailto:[log in to unmask]]
> Sent: Monday, April 30, 2001 12:20 PM
> To: [log in to unmask]
> Subject: Re: Zanaflex
>
>
> Hi, Kyle,
>
> I'm taking 2mg four times a day.  You're right, the
> drowsiness is not
> helping me function that well, so I'm making an
> appointment with my
> neurologist to see if he thinks just taking it at
> bedtime would be OK.  Its
> effectiveness may depend on the drug being
> constantly in the system; hence
> the around-the-clock dosage.
>
>            Kathy
>
> "St. John's University Cerebral Palsy List"
> <[log in to unmask]>
> wrote:
> > Kathy,
>
> I recently returned to Zanaflex after a forced
> 3-year hiatus (insurance co.
> would not approve--still haven't yet--I'm using
> 'physician's samples').
>
> I found that my first go-around with Zanaflex to be
> more therapeutic than
> now, but the greatest issue I have with the drug is
> incapacitating
> drowsiness.  I would not dare take the stuff in the
> daytime--20 minutes
> after ingestion and it's, "Boom, Boom,  out go the
> lights!".  So I still
> have daytime spasms.  I do get night-time relief,
> though.  Are you taking
> 4mg/day?  If not, what's your dosage and interval?
>
> Regarding your other symptoms, I haven't experienced
> the dry-mouth, but the
> weakness in the musculature simply means the med is
> doing its job.
>
> -Kyle

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