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Subject:
From:
"Barber, Kenneth L." <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 27 Nov 2001 07:35:48 -0500
Content-Type:
text/plain
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sorry your family did not know better than to yell when you fell. when i
fell, my mom cried with me. my family is so great.

-----Original Message-----
From: Rayna Lamb [mailto:[log in to unmask]]
Sent: Tuesday, November 27, 2001 2:36 AM
To: [log in to unmask]
Subject: Re: hurt, hurt, hurt, hurt.... etc


Bobby,

It always helps to know that others have this problem too, thanks. :-)
I've always been careful of my weight, because if I weigh too much it
puts too much strain on my knees.  Unfortunately I can't do anything
about my height, which means there is a limit to how much weight I can
take off before I am too skinny....  Having long arms and legs mean
I'm more likely to clobber my self on something on the way down,
thankfully I didn't do that this time.

You guys, it is soooo good to be able to talk about falling over with
others who understand, all my life I've been made to feel ashamed of
falling over, because it is seen as unacceptable for anyone over the
age of about three to fall on a regular basis.  My mother used to yell
at me when ever I fell, and go on about how `unladylike' it was.  I
think I still expect to get yelled at for doing it (oh sh*t, think I'm
going to cry).  It means so much to me to have you all to talk to, I
don't feel like I'm doing so much so wrong any more.  All those things
I used to think were bad and my fault, now I know they aren't, and it
isn't my fault, just part of the CP.  Sorry, I'm babbling, I always
feel a bit weak and vulnerable when something like this happens.  It's
so hard sometimes, I get so tired of it.  And it was always so hard
not having anyone to talk to about it.  It makes such a difference to
hear that others go through it too.

Thank you all so much for being here, I am deeply grateful that I know
you all, if only I had known you when I was a kid it would have made
life so much easier.  It's really hard when you need help and there's
noone there.

Anyway, I'm really bawling now, so I'll go.

Rayna

On Tue, Nov 27, 2001 at 01:27:41AM -0500, Bobby G. Greer, Ph. D. wrote:
    Rayna,

        Falling down is terrible for me. It hurts and I have trouble getting
up.
    I used to get up with no help, but now if there is nothing sturdy to
grab, I
    to have help. It's part of being CP. and getting older and being fat. If
you
    are CP., you should watchh you weight. Also, my muscles have become
    exponentially weaker in the past 2-3 years due to my restricted life
style.
    Did not mean to burden with my problems. I sincerely hope you are ok.

    Bobby

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