Kendall,



Under Community Based Programs, (MAPC & CIP) I can only get coverage
from 7AM-10PM.



Kathy Jo









  Kendall David Corbett wrote:

>Kathy Jo,
>
>Mag's right.  Back when I was working 1:1 with folks with disabilities
>was shortly after the de-institutionalization movement got a good head
>of steam, and Colorado was working on moving people into community
>programs.  After 1999, and the Olmstead Supreme Court decision, it has
>been easier to get people into least restrictive environments.
>
>It is expensive, but in most cases, it's less expensive than 24/7 care
>in a nursing home or similar setting.  This is possible because the
>staff in nursing home4s get paid more  than the staff for most
>disability providers.  In '88 and '89, when I was doing direct staffing
>for folks with disabilities, the minimum wage was increased from $3.85
>an hour to $4.25 an hour, so everybody that started when I did got a
>raise.  A lot of states are now working to bring up the wages of their
>direct support staff to a livable wage.
>
>A lot of the people receiving community based services are covered under
>Medicaid Home and Community Based Waiver Services, because in addition
>to being a better way for people to live (healthier, more independent),
>it's less expensive.  In Wyoming, the cost to house people in our one
>remaining institution for people with disabilities is about 3X as much
>as serving people in the community.
>
>My grandmother's health in the last two years of her life was so bad
>that we had to put her in a nursing home, and it cost $4500.00 per
>month.  The average cost to serve someone in community programs in
>Wyoming is around $2100.00 per month
>
>Kendall=20
>
>An unreasonable man (but my wife says that's redundant!)
>
>The reasonable man adapts himself to the world; the unreasonable one
>persists in trying to adapt the world to himself. Therefore, all
>progress depends on the unreasonable man.
>
>-George Bernard Shaw 1856-1950
>
>-----Original Message-----
>From: Magenta Raine [mailto:[log in to unmask]]=20
>Sent: Tuesday, August 02, 2005 12:24 PM
>To: [log in to unmask]
>Subject: Re: FW: [Fwd: Re: I'm Back]
>
>It is in their plans. It is their right and everybody's rights to live
>in
>the least restrictive environment.
>
>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>[log in to unmask]
>How can we expect new results if we do what we've always done?
>War is outdated for the 21st century!
>
>
>
>
>>[Original Message]
>>From: Kathy Jo Pink <[log in to unmask]>
>>To: <[log in to unmask]>
>>Date: 8/2/2005 6:47:36 AM
>>Subject: Re: FW: [Fwd: Re: I'm Back]
>>
>>Kendall Corbet,
>>
>>
>>
>>How could these people afford 24/7 Care?  Kathy Jo Pink
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>Kendall David Corbett wrote:
>>
>>
>>
>>>Kathy Jo,=3D20
>>>
>>>Depending on the person you're working with to draw up a plan, they
>>>
>>>
>may
>
>
>>>use either term.  In my work environment, a PCP deals more with how
>>>things are now, and a PFP deals with how you'd like them to be.
>>>
>>>In the agency I worked for when I first got out of college, there
>>>
>>>
>were a
>
>
>>>couple of people who had 24/7 care.  In general they were the people
>>>with the most severe physical and/or cognitive disabilities; usually
>>>they had a lot of seizures and so needed someone there in case they
>>>
>>>
>had
>
>
>>>a seizure.
>>>
>>>Kendall Corbett
>>>
>>>An unreasonable man (but my wife says that's redundant!)
>>>
>>>The reasonable man adapts himself to the world; the unreasonable one
>>>persists in trying to adapt the world to himself. Therefore, all
>>>progress depends on the unreasonable man.
>>>
>>>-George Bernard Shaw 1856-1950
>>>
>>>
>>>-----Original Message-----
>>>From: Kathy Pink [mailto:[log in to unmask]]=3D20
>>>Sent: Monday, August 01, 2005 5:02 AM
>>>To: [log in to unmask]
>>>Subject: FW: [Fwd: Re: I'm Back]
>>>
>>>Is a PFP the same as Person-Centered Planning?Is there such a thing
>>>
>>>
>as
>
>
>>>one
>>>to one twenty-four hour round-the-clock care?  I know it would be
>>>expensive
>>>.
>>>
>>>
>>>
>>>Kathy Pink
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>>From: Kathy Jo Pink <[log in to unmask]>
>>>>To: [log in to unmask]
>>>>Subject: [Fwd: Re: I'm Back]
>>>>Date: Sun, 31 Jul 2005 08:15:16 -0500
>>>>
>>>>
>>>>
>>>>-------- Original Message --------
>>>>Subject:       Re: I'm Back
>>>>Date:  Tue, 19 Jul 2005 14:30:33 -0600
>>>>From:  Kendall David Corbett <[log in to unmask]>
>>>>Reply-To:      St. John's University Cerebral Palsy List
>>>><[log in to unmask]>
>>>>To:    [log in to unmask]
>>>>
>>>>
>>>>
>>>>Kathy Jo said:
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>>I don't have a plan to make it happen?  Any ideas, anyone?
>>>>>
>>>>>
>>>>>
>>>>>
>>>>Get in touch with Linda Rowley at the Waisman Center, and ask her
>>>>
>>>>
>for
>
>
>>>>info on personal futures planning, and someone close to Lancaster
>>>>
>>>>
>that
>
>
>>>>can help you put a PFP (personal future plan) together.  I could
>>>>
>>>>
>refer
>
>
>>>>you to several people in Wyoming, but since you're in Wisconsin,
>>>>
>>>>
>that
>
>
>>>>won't work.  Also, ask Linda about a program called "Partners in
>>>>Policymaking."  I think something like that would be immensely
>>>>
>>>>
>helpful
>
>
>>>>to you!
>>>>
>>>>Here are links to:
>>>>
>>>>1. The Waisman Center, and to Linda Rowley
>>>>
>>>>Waisman Center on Human Development=3D3D20
>>>>University of Wisconsin-Madison=3D3D20
>>>>1500 Highland Ave=3D3D20
>>>>Madison, WI 53705-2280=3D3D20
>>>>Main Phone:  608-263-1656=3D3D20
>>>>Main Fax:  608-263-0529=3D3D20
>>>>Website:  http://www.waisman.wisc.edu/
>>>>
>>>>
>>>>Family Village Internet Project
>>>>Linda Rowley, LPN, BS
>>>>608-263-5973
>>>>[log in to unmask]
>>>>http://www.familyvillage.wisc.edu/index.htmlx
>>>>
>>>>
>>>>Jean Boehnen probably would have answers to your general questions
>>>>
>>>>
>on
>
>
>>>>CP:
>>>>
>>>>Cerebral Palsy Clinic
>>>>Jean Boehnen, RN=3D3D09
>>>>608-263-7335=3D3D09
>>>>[log in to unmask]
>>>>
>>>>
>>>>2. Personal Futures Planning,=3D3D20
>>>>
>>>>http://www.iidc.indiana.edu/cedir/pfplanbib.html
>>>>
>>>>The above link is a bibliography on person centered planning, which
>>>>
>>>>
>is
>
>
>>>>another name for personal futures planning.=3D3D20
>>>>
>>>>3. Partners in Policymaking, which got started in Minnesota.
>>>>
>>>>http://www.partnersinpolicymaking.com/
>>>>
>>>>Kendall Corbett
>>>>
>>>>An unreasonable man (but my wife says that's redundant!)
>>>>
>>>>The reasonable man adapts himself to the world; the unreasonable one
>>>>persists in trying to adapt the world to himself. Therefore, all
>>>>progress depends on the unreasonable man.
>>>>
>>>>-George Bernard Shaw 1856-1950
>>>>
>>>>
>>>>-----Original Message-----
>>>>From: Kathy Jo Pink [mailto:[log in to unmask]]=3D3D20
>>>>Sent: Tuesday, July 19, 2005 11:20 AM
>>>>To: [log in to unmask]
>>>>Subject: Re: I'm Back
>>>>
>>>>
>>>>I like living with my parents.  I don't know what I want.  I guess
>>>>ideally , I want to live in my own place (apartment?).  If that does
>>>>
>>>>
>>>>
>>>>
>>>not
>>>
>>>
>>>
>>>
>>>>work I will go to an adult family home, a group home, or a nuring
>>>>
>>>>
>home
>
>
>>>>(a nursing home would probably be my last choice.)  I don't have a
>>>>
>>>>
>plan
>
>
>>>>to make it happen?  Any ideas, anyone?
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>_________________________________________________________________
>>>Don't just search. Find. Check out the new MSN Search!
>>>http://search.msn.click-url.com/go/onm00200636ave/direct/01/
>>>
>>>
>>>
>>>
>>>
>>>
>
>
>
>