Dana,

        How are you???

Bobby


>Judi, Doctor John Loeser over at the University of Washington Pain Clinic
>did my pump, and I think he can give you a good opinion. Call him at (206)
>598-4282.
>
>Dana and Gillis
>[log in to unmask]
>
>At 07:47 PM 11/17/99 -0500, you wrote:
>>Hi!
>>
>>My name is Judi Kloper and I live in Oregon, along with my husband Peter
>>Owens and three of our five kids.  The older two were adopted as older kids
>>from India and now live out of the home; one lives in a group home.
>>
>>Our three at home are by birth, from India and from China.
>>
>>Our son, Dana, is now 17 1/2 yrs old, and came to us from India at 8 weeks
>>old weighing just four pounds on arrival.  He is gorgeous, smart, charming,
>>and has severe quad. spastic and athetoid CP.  He's a senior in high school
>>and thinking about college.  This is a huge task we're starting on--exploring
>>colleges and careers for a kid who is so very physically limited.
>>
>>Anyway, Dana has the baclofen pump (for 14 months now) and though he's had
>>some improvement, it's not been near as wonderful as we had heard it'd been
>>for others.  In fact, he has wanted it out.  He used to get botox injections,
>>which helped for a while, but then it seemed that he needed to get injections
>>more and more frequently.  He'd gone without them for about a year and just
>>recently got some in his left leg cus of the pain he was having, but it only
>>worked for a brief time.
>>
>>Last June Dana had hip surgery and hamstring release (that was in both legs,
>>and just the left hip was operated on.)  While finally he doesn't have the
>>hip pain he was having, he now has incredible pain in his left upper thigh.
>>Can't move him from any position to another, in fact, just moving his left
>>leg an inch or two causes incredible pain for him.  He continues to take
>>Klonzapin (Clonipin?) at night, along with one ibuprofen.  The doctors at
>>Shriners in Portland haven't come up with a reason for this or a "fix," and
>>we are tired of going up there and saying the same thing, yet our son is in
>>intense pain and he cannot, nor can we, go on like this.  This is supposed to
>>be his senior year, which means good times as well as some learning
>>times....but it's really been difficult for him to focus.
>>
>>Therefore, we would like to seek a second opinion.  If any of you in the
>>Seattle area could recommend some physicians for us to see (orthopedic with
>>specialty in CP and a neuroligist with specialty in CP, Baclofen, Botox, etc)
>>I sure would appreciate it.
>>
>>Thanks so much.
>>Judi