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Subject:
From:
"J. McCarthy" <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Mon, 1 Jul 2002 11:07:55 -0700
Content-Type:
text/plain
Parts/Attachments:
text/plain (55 lines)
I agree with "CP Aging Syndrome".   It's like we age
faster, develop arthritis faster, fatigue faster,
etc...than the general public.  At age 30, we have
bodies of a 50 year old and at 50, we have 70 yr old
bodies.

It's probably not going to be CP, per se, that puts me
100% in a chair, but the arthritis that seems to be
developing in my strong (less CP) side and my
increasing lack of balance.

Jennifer

--- Kathy Salkin <[log in to unmask]> wrote:
> Maybe I'm coming from way out left field here, but
> the term, "Post Cerebral
> Palsy Syndrome" bothers me, as I like accurate
> labels. Bear with me, please.
>
> Polio is very different from CP.  Polio is a virus,
> and if it doesn't kill you
> (which it can) you recover from the illness.  The
> muscle atrophy arising from
> Polio is an effect from the attack of the virus to
> the brain, not the virus
> itself.  Once you've recovered from polio, that's
> it, you're post-polio.
>
> CP, on the other hand is a condition arising from
> injury to the brain, whether
> it happened during birth or afterwards.  It's not an
> illness you recover from;
> there are no vaccinations against CP because it's
> not a pathogen.  Therefore
> in my opinion, one cannot be post-CP as it's always
> there.
>
> So I propose calling this condition we CP'rs face as
> we age, "CP Aging
> Syndrome."  If I'm in the minority here, I'll be
> glad to concede to the
> majority.
>
> Kat
>  ˇ

=====
TTYL,
Jennifer

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