we now have 3 opinions.  they all feel that this has  happened over time 
and not from an acute trauma.  they want it done sooner  rather than later bc 
we now know about it.  only accidentally found  out bc of ct scan done to 
find source of an infection he was hospitalized for  last week.  glad we 
know...kinda wish we didnt...
 
thanks for all of your advice.
 
best,
denise
 
 
In a message dated 12/10/2010 9:07:30 A.M. Eastern Standard Time,  
[log in to unmask] writes:

Apparently you trust  a physical brace to keep  one  alive

The child's situation in q is far more dangerous.

A brace  will "control the surrounding neck bones IF  the brace stays  put.
Braces brake, braces eventually "give way"

The childs problem  in  INSIDE  the neck.

Surgery MIGHT well be  advised

Braces are not the entire answer  in ALL  cases

I admire your faith and trust in a brace but it MIGHT not  be the answer if
a brace fails.

That's the risk w a brace and the  risk of surgery is just as daunting

-- third opinion from another neuro  surgeon.....

-----Original Message-----
From: Cerebral Palsy List  [mailto:[log in to unmask]] On Behalf Of
Chester Worwa
Sent:  December 10, 2010 08:55
To: [log in to unmask]
Subject: Re:  Spinal fusion

How if he has a brace on?


Chester  Worwa

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