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Subject:
From:
Bob Segalman <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Sun, 19 Dec 1999 13:55:56 -0800
Content-Type:
text/plain
Parts/Attachments:
text/plain (33 lines)
No matter what goes wrong with me, the docs thinks that it's a CP effect.  I
had leg pain for 20 years before they were willing to x ray my hip;  then
they apologized when the x ray showed that that hip should have been fused
20 yurs previously.

----- Original Message -----
From: R. Hintz <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, December 17, 1999 8:25 PM
Subject: Re: An Interesting Post/Women's Health discussions


> Finding a doc open and intelligent enough to learn about cp has always
been
> challenging. Most don't think I know what's normal for my own body, or
make
> assumptions about what's normal for CP. My fear is that at some point I'll
> have something serious (like a stroke or a brain tumor) and I'll get
"that's
> normal, its just her CP" response. This happened 18 months ago when I had
> episodes of urinary incontinence and the urologist decided it was just my
CP
> since they are "associated." It turned out to be a symptom of something
else
> entirely.
>
> Although I am ambulatory, I have significant trouble with my balance. I
> always see mammograms demonstrated as the woman standing with an arm up.
This
> would risk a fall for me. Has anyone had a mammogram sitting down or other
> accommodations? I'd hate to fall in the middle of a mammogram! Renee
>

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