i don't use a scooter, chair, or walker, but, i did see some snazzy
equipment today at the expo. i'll be going again sunday with my wife. i am
trying to remember who was asking about a special piece of equipment and
what it was. i  could maybe get information.

-----Original Message-----
From: Chester Worwa [mailto:[log in to unmask]]
Sent: Friday, November 10, 2000 6:47 AM
To: [log in to unmask]
Subject: Re: Implications of Cerebral Palsy on the Aging or is that the
ot her way rou...


Dear Betty,

     I do understand your way of thinking.  I'll tell
all of you the things I was tought about CP and so on.
 The biggest rule that I learned at a young age was
the fact that sitting for long periods of time is no
good for people with CP because the hamstrings get
very tight.  Believe me I've been doing way too much
sitting lately and my PT thought I was still tight
from all the sitting at camp.  People with CP have to
stay as active as possible.  When I first went to
college, I used ny electric wheelchair all of the time
and I got so tight that I couldn't hardly move my
legs.  So, I moved into the college dorms, walked with
my walker a lot, and worked out in the weight room at
the college.  After a time, I went back to PT just to
keep things as stretched out as possible.  Right now I
just need a job to keep my energy level up.


Chester Worwa


--- Betty B <[log in to unmask]> wrote:
> In a message dated 11/09/2000 7:04:40 AM Eastern
> Standard Time,
> [log in to unmask] writes:
>
> > If I could stop having CP, believe me, I would.
>
> Point well taken my friend.  I intended no real
> offense.  I am disabled too,
> and have chronic pain that I would like to dispense
> with.
>
> I beg you to forgive my unkind sarcasm.  I just lost
> my mother who believed
> that she could think her way out of cancer, thanks
> to the teachings of
> Christian Science.  The "healing by thought" school
> of medicine is a touchy
> subject for me.  It has been so in my family as long
> as I can remember.  I --
> as well as other members of my extended family --
> believe that it was also
> the influence that resulted in my sister's suicide
> (although she made that
> decision and the blame ultimately rests with her).
>
> I'm sure you can imagine that there was also some
> invalidation of my
> disability.
>
> For this discussion however, it also tends to
> invalidate the feelings and
> expressions of those who suffer from physical
> problems secondary to CP.  That
> was the point I wanted to make.  The problems these
> folks have been talking
> about are real.  In some cases, they constitute
> disabilities all by
> themselves.
>
> I will refrain from further comment.  I do
> understand your feelings on the
> matter.
>
> No hard feelings please, okay?  You're a great guy
> and I like you.  Sometimes
> I have been known to lose my objectivity -- it's
> that pesky human being
> thing.
> Betty