C-PALSY Archives

Cerebral Palsy List

C-PALSY@LISTSERV.ICORS.ORG

Options: Use Forum View

Use Monospaced Font
Show Text Part by Default
Show All Mail Headers

Message: [<< First] [< Prev] [Next >] [Last >>]
Topic: [<< First] [< Prev] [Next >] [Last >>]
Author: [<< First] [< Prev] [Next >] [Last >>]

Print Reply
Subject:
From:
Anee Stanford <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 2 Nov 1999 14:28:36 EST
Content-Type:
text/plain
Parts/Attachments:
text/plain (92 lines)
Hi Dina-

I did theraputic horseback riding for a number of years...haven't done it in
about a year becasue of the new instrutor the program hired who treated me
like I was a retard (she did that to everyone)...and found it quite fun and
enjoyable and got some of the same binifits as you only that I could only
ride once a week the way this program was set up.

Anyway you mentioned the NACD program.  I had never heard of it and was
wondering if you could tell me abot it and it;s uses.  I am very intrested in
alternitive therpies as a way to help controll the aging sypmtoms.

Have you ever used magnet therapy to help controll pain?  My grandfather (80
years old) swears by it but I am very skeptical about it.  Just wondering if
you had any experience with this.

You can e-mail me privetly if you want. My e-mail is [log in to unmask]

Yours,
Anee
http://www.geocities.com/aneecp/CPIC.html

>>Hi all,

>>In my experience: When I was a teenager, I was overweight and stuff. I lived
>>abroad for a few years. I lost weight, and walked miles everyday. I was in
>>GREAT shape. Every time the weather changed, I knew it in my joints and
stuff
>>even though I was in GREAT shape.  I got sick with an illness (reoccurring
>>tonsillitis) for close to a year in my mid-20's. Since then, I have been
>>struggling with weight issues (again, sigh!!!!) and food allergies. By the
>>time I was 31, I was living with constant pain in my ankles, told to get a
>>walker because I had "osteoarthritis, or osteoporosis" and I was going to
>>need it soon. I couldn't seem to lose the weight no matter what I did.
>>
>>I went to a nutritionist who diagnosed me as having food allergies, I lost a
>>ton of weight on the diet within a short period of time. I did GREAT for
>>about a year. Sine then, I have noticed that certain foods trigger the joint
>>pains which will go away as soon as I stop eating certain foods. I am almost
>>back to the weight that I was when I started with the nutritionist, however,
>>I don't live in constant pain like most of you.
>>
>>I have a lot of energy. I ride horses 3 days a week, have gained back a lot
>>of range of motion  and flexibility in my body because of the riding
therapy.
>>I walk much straighter and taller than I have in years. My Rolfer is sooooo
>>impressed with the improvements that I have made in the past few years. She
>>can't get over it. She has known me for over 20 years.  I no longer walk in
>>the crouched position with my knees bent all the time. My upper back pain is
>>going away. (I have had a vertebrae or two out of place for the past 7 years
>>or so.) It is slowly returning to its place more and more without popping
out
>>all the time. I am now working on changing my gait which when it becomes
>>permanent will be a lot more "normal" and take a lot of stress off my lower
>>back.
>>
>>These changes are occurring because I am doing therapeutic horseback riding,
>>neurofeedback, Rolfing, and the NACD program. I also go to a chiro on a
>>pretty regular basis. I am also taking nutraceuticals products which are
>>helping my body cope as well. So do I think that you can help your body
heal?
>>Yep, you bet!!! I am living proof of it. Do you have to believe that once
you
>>start "falling apart" there's nothing you can do about it? NOPE!!!
>>
>>
>>The last ortho I consulted with told me that I didn't have "osteoarthritis
or
>>osteoporosis" but that I have very limited range of motion in my feet due to
>>the surgeries that I have had which led to a "naturally fused bone" in my
>>feet which further reduces the range of motion available in my feet. I was
>>spraining my ankles on a regular basis trying to get some range of motion in
>>them that I don't have. This "naturally fused bone" is one that they wanted
>>to fuse in a "triple arthethosis" when I was a teen. I, of course, refused
>>this surgery among others and still don't need it. He told me that if I ever
>>had to have anything fused, it might be one bone, at worst two.
>>
>>However since I started the NACD program and got wedges put in my shoes, my
>>ankles look less like they are ready to collapse and are straightening
>>themselves out because I am using those muscles more properly. I am no
longer
>>wearing orthotics. I wore UCB orthotics which come up to the ankles.
>>
>>Like I mentioned last week, I am getting INCREDIBLE results because of the
>>neurofeedback. I am much looser when I am consistent with it. Just some
>>thoughts of my own experience on how much control you really have over your
>>mind and body's abilities. Sorry for this being so long-winded and stuff.
:-))
>>
>>
>>Dina

ATOM RSS1 RSS2