Regarding what Kat said,  by all means consult with an advocacy expert,
but I'd say a good dose of indignation and self advovcacy was in order.
with that  hospital and doctor.   Go to you local CII,  Some of them
have Fireeaters for advocacy experts., and they might want to take up
the hospital as a sensitivety project.   However, the statements made to
you don't surprise me, Jen.  The medical profession thinks we're unable
to have "normal lives."

kat wrote:

>I'd consult an advocacy expert; is there one in your area?  They can probably
>aid in communicating with your doctors and staff about patient relations.
>I'd not bring a lawyer into it uniess things get nasty.  Also every hospital
>has a patient relations manager or the equivelent; they may be able to help
>you.
>
>What about your husband?  Can't he go to bat for you?
>
>Kat
>
>