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St. John's University Cerebral Palsy List
Date:
Sun, 22 Feb 2004 07:54:26 -0500
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Joy,

How about attaching the letter? I'm totally confused here.

Kat

On Saturday 21 February 2004 09:16 pm, you wrote:
> I agree with your stance on the issue, but this letter is very poorly
> worded.  First of all, not everyone who feels passionately about these
> issues is "the caregiver to a child with cerebral palsy".  People with
> disabilities (and other non-disabled friends and family) would also be
> willing to take action on this, but this letter excludes them.  It also
> disempowers people with disabilities from advocating on their own behalf.
> Also, I resent the implication that the cap would "make us victims twice".
> I don't consider myself a victim, and by sending this letter to
> legislators, the organization is perpetuating a stereotype that is
> pervasive and inaccurate.  While I recognize that action alerts are often
> drafted quickly to accommodate the time-sensitive nature of the issue, I
> encourage you to reconsider the wording used here.
>
> Joy Welan

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